Long COVID
Severe → much betterIll 4 years before improving or writingNeeds ongoing treatment
Long COVID with extreme fatigue, much better after functional-medicine protocol
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
have long covid (on top of cfs and cancer recovery and also mcas)
In context ↗ - At worst: Severe
struggling with speech and needing to lie down even from washing my hair or doing one lot of laundry
In context ↗ - Now: Much better
Ive gone from extreme fatigue, joint pain, bloating, having constant headaches, brain fog, struggling with speech ... to reasonably functioning, sleeping better, being able to research and recall information, speak normally
In context ↗ - Began after: COVID
I dont have a toddler but have long covid (on top of cfs and cancer recovery and also mcas)
In context ↗
Read from 14 of their posts and comments; links to the 10 this page draws on
Summary
Harbor 73427 had long COVID about four years on top of pre-existing CFS and MCAS, with extreme fatigue, joint pain, headaches, brain fog and breathlessness, needing to lie down after washing her hair. After six weeks of a functional-medicine protocol (folinic acid for folic acid, active B complex, low-histamine diet, quercetin, zinc) she became reasonably functioning; headaches and palpitations stopped, though CFS limits remain.
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What they tried
What they credit
folinic acid· Helped a lot · mainlow histamine/no histamine liberator diet· Helped · mainactive B complex· Helped · mainzinc picolinate· Helpedquercetin· Helpedmagnesium threonate and magnesium malate· Helpedomegas / omega 3 EPA/DHA· Helpedgluten and dairy free, low FODMAP, no nightshades or added sugar, lower salicylates· Helpedgluten and dairy free, low FODMAP, no nightshades or added sugar, lower salicylates· Helpedgluten and dairy free, low FODMAP, no nightshades or added sugar, lower salicylates· Helpedgluten and dairy free, low FODMAP, no nightshades or added sugar, lower salicylates· Helpedsaccharomyces boulardi· Helpedoregano herb, marshmallow extract· Helpedoregano herb, marshmallow extract· Helpedolive leaf· Helpedturmeric, ginger, camomile/lemonbalm/tulsi teas, green tea phytosome· Helpedturmeric, ginger, camomile/lemonbalm/tulsi teas, green tea phytosome· Helpedturmeric, ginger, camomile/lemonbalm/tulsi teas, green tea phytosome· Helpedturmeric, ginger, camomile/lemonbalm/tulsi teas, green tea phytosome· Helpedturmeric, ginger, camomile/lemonbalm/tulsi teas, green tea phytosome· Helpedturmeric, ginger, camomile/lemonbalm/tulsi teas, green tea phytosome· Helpedturmeric, ginger, camomile/lemonbalm/tulsi teas, green tea phytosome· Helpedepsom salt baths· Helped
Also tried
DAO· HelpedFunctional medicine approach (in-home gene, microbiome, OAT and breath testing with tailored remedies)· Helpedantidepressants· Helpedcognitive therapy· HelpedD3 /k2· Helpedvitamin C· Helped5 day water fast· Worsepro and postbiotics· Not said5htp· Not saidlutein/zeaxanthin· Not said
Their words about each treatment
- low histamine/no histamine liberator diet · Helped
My bloating went going low histamine diet and taking DAO.
In context ↗ - Functional medicine approach (in-home gene, microbiome, OAT and breath testing with tailored remedies) · Helped
After 4 years of struggle, this approach has seen improvement (especially neuroinflammation) within a month.
In context ↗ - 5 day water fast · Worse
I recently did 5 day water fast before a medical procedure and trying to reintroduce food again afterwards was very challenging.
In context ↗ - active B complex · Helped
switching bs, stopping folic acid then adding in the other stuff has seen the shift
In context ↗ - folinic acid · Helped a lot
switching to folinic acid (crosses into brain). Made a HUGE difference for us in tackling neuroinflammation.
In context ↗ - antidepressants · Helped
it worked in just a few weeks and I was able to come off them with no return of headaches
In context ↗ - cognitive therapy · Helped
I was able to do cognitive therapy to undo the impact of that depression
In context ↗ - zinc picolinate · Helped
Quercetin and zinc have really helped too.
In context ↗ - quercetin · Helped
Mast cell stability - quercetin and zinc (very noticeable difference for me)
In context ↗ - magnesium threonate and magnesium malate · Helped
Breathing - magnesium malate (and threonate), can finally take deep breaths
In context ↗ - omegas / omega 3 EPA/DHA · Helped
Joint pain- excluded nightshades and sugar, take omegas
In context ↗ - gluten and dairy free, low FODMAP, no nightshades or added sugar, lower salicylates · Helped
already gluten and dairy free , low fodmap
In context ↗ - pro and postbiotics · Not said
Take pro and postbiotics but cant pinpoint a specific symptom improvement to them yet.
In context ↗ - saccharomyces boulardi · Helped
Bladder inflammation - saccharomyces boulardi
In context ↗ - oregano herb, marshmallow extract · Helped
stomach issues - low histamine, oregano herb, marshmallow extract
In context ↗ - olive leaf · Helped
olive leaf helped my sinus inflammation
In context ↗ - turmeric, ginger, camomile/lemonbalm/tulsi teas, green tea phytosome · Helped
turmeric, ginger, camomile/lemonbalm/tulsi teas
In context ↗ - D3 /k2 · Helped
we also take daily d3
In context ↗ - vitamin C · Helped
Some of these things we had already done for years like the d3 , vit c, chamomile, aswell as threonate and 5htp
In context ↗ - 5htp · Not said
aswell as threonate and 5htp
In context ↗ - lutein/zeaxanthin · Not said
currently taking lutein/zeaxanthin
In context ↗ - epsom salt baths · Helped
Palpitations have stopped by reducing salicylates, adding more sulfur to diet and having epsom salt baths
In context ↗
Approaches: Alternative therapies · Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | long COVID on top of pre-existing CFS, cancer recovery and MCASI dont have a toddler but have long covid (on top of cfs and cancer recovery and also mcas)In context ↗ | Severe |
| before September 2026 | extreme fatigue, constant headaches, brain fog, having to lie down after washing hairneeding to lie down even from washing my hair or doing one lot of laundryIn context ↗ | Severe |
| 2026-10-18 | improved after about six weeks of a functional-medicine protocolto reasonably functioning, sleeping better, being able to research and recall information, speak normallyIn context ↗ | Mild |
| 2026-10-22 | still improving; sinuses, palpitations and parosmia better, MCAS under controlive improved on a high dose b complex and folinic acid among other thingsIn context ↗ | Mild |
Adverse events
- Extended water fasting (3+ days)“I recently did 5 day water fast before a medical procedure and trying to reintroduce food again afterwards was very challenging.” In context ↗ Refeeding or deficiency problems
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsLoss of smell or tasteMast cell (MCAS) & allergiesPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Brain fog
brain fog, struggling with speech
In context ↗ - Headaches & migraine
having constant headaches
In context ↗ - Pain & fibromyalgia
Ive gone from extreme fatigue, joint pain, bloating
In context ↗ - Gut problems
stomach issues - low histamine, oregano herb, marshmallow extract
In context ↗ - Breathlessness
I dont get breathless doing the stairs anymore.
In context ↗ - Heart symptoms & palpitations
Palpitations have stopped by reducing salicylates
In context ↗ - Anxiety & low mood
Reducing feelings of anxiety
In context ↗ - Sleep problems
to reasonably functioning, sleeping better
In context ↗ - Loss of smell or taste
Still have parosmia but not as frequently
In context ↗ - Mast cell (MCAS) & allergies
I also have my mcas under control for the first time in years.
In context ↗ - Post-exertional malaise
even managed a big medical procedure without crashing afterwards
In context ↗
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