ME/CFS
Outcome unclear
ME/CFS: focusing hurt, psych meds crashed them; CCI suspected, neck brace worsened vertigo
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Oct 2023
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Commenting in October 2023, they said focusing hurt their brain, and psych meds tended to work then crash them badly. A sedative given in hospital made them too tired to breathe, with breathing stopping on and off, and they slept for two days straight; Atarax did the same. Last year Jeff Woods said their symptoms sounded like CCI but could not diagnose them; seeing Dr Bolognese was tricky insurance/money-wise, so they had not gotten an actual opinion. A neck brace made them more uncomfortable with vertigo, and they probably didn't wear it long enough.
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What they tried
Also tried
breathing· Helpedpsych meds· Worseneck brace· Worseunnamed drug given in the hospital· Much worseatarax· Not said
Their words about each treatment
- breathing · Helped
sometimes breathing does help
In context ↗ - psych meds · Worse
psych meds but they tend to work then crash me really bad
In context ↗ - unnamed drug given in the hospital · Much worse
the drowsy side effect makes me so tired that i get too tired to breathe
In context ↗ - atarax · Not said
i remembered they also gave me atarax which did the same thing
In context ↗ - neck brace · Worse
i had a neck brace but it was making me more uncomfortable with vertigo and stuff
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | sedative given in hospital; days of unrousable sleep, unable to movei get too tired to breathe making my breathing stop on and off then i’ll sleep for like two days straight and not really be able to move at allIn context ↗ | Very severe |
| 2023-10-10 | still very ill; CCI suspected but specialist evaluation blocked by insurance and moneyhe said my symptoms sounded like cci ... getting to see dr bolognese is very tricky insurance/money wiseIn context ↗ | Severe |
Adverse events
- Antidepressants (unspecified)“i can try psych meds but they tend to work then crash me really bad” In context ↗ Made symptoms worse
- “they gave it to me in the hospital ... the drowsy side effect makes me so tired that i get too tired to breathe” In context ↗ Side effects
- Hydroxyzine (Atarax, Vistaril)“i remembered they also gave me atarax which did the same thing” In context ↗ Side effects
- Cervical collar / neck brace“i had a neck brace but it was making me more uncomfortable with vertigo and stuff” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
it hurts my brain to even focus
In context ↗ - POTS & dysautonomia
making me more uncomfortable with vertigo
In context ↗