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Long COVID No benefitIll for 2.5 years

Long COVID headaches and ear nerve sensations for two and a half years, tried gabapentin

Condition
Long COVID
At worst
Not stated
Ill for
2.5 years
Last post
Sep 2024
In their words
  • Condition: Long COVIDI've had your exact symptoms for 2 1/2 years. I'm still suffering from them. In context ↗
  • Now: No benefitI've had your exact symptoms for 2 1/2 years. I'm still suffering from them. ... The pain is not totally gone, but 80% of it is.
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user has had headaches and nerve sensations around the ear for two and a half years. Gabapentin relieved about 80% of the pain over two years. Qulipta at 60 mg gave substantial relief but caused insomnia; a 10 mg dose gave less relief but allowed sleep, and 30 mg was also helpful. CGRP inhibitors reduced some headaches and neuro sensations; a neurosurgeon speculated the ear issue may be a peripheral versus cranial neuropathy. Symptoms persisted.

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What they tried

Also tried

Gabapentin· Helped a lotQulipta (CGRP inhibitor)· Helped
Their words about each treatment
  • Gabapentin · Helped a lotGabapentin has also been my life saver for two years now. The pain is not totally gone, but 80% of it is. In context ↗
  • Qulipta (CGRP inhibitor) · HelpedI've had some luck reducing headaches and neuro sensations in the head using CGRP inhibitor medications. Specifically, Qulipta. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
about 2022Gabapentin reduced head pain by about 80%Gabapentin has also been my life saver for two years now. The pain is not totally gone, but 80% of it is. In context ↗
2024-09-13Qulipta 60 mg gave relief including ear area but caused insomniaOn 60 mg, I had a lot of relief, even in the ear area, but the medication gave me insomnia. In context ↗
2024-09-14Still suffering head pressure and nerve sensations, headaches reduced on QuliptaI've had your exact symptoms for 2 1/2 years. I'm still suffering from them. In context ↗

Adverse events

  • “the medication gave me insomnia” In context ↗ Insomnia from treatment

Symptoms mentioned

Their words about their symptoms
  • Neuropathy & tinglingI've had some luck reducing headaches and neuro sensations in the head using CGRP inhibitor medications. In context ↗
  • Sleep problemsthe medication gave me insomnia In context ↗

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Asking aboutAlder 59439’s story

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