Housebound with long COVID, some improvement on a low-histamine diet
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 7 months
- Last post
- Dec 2022
In their words
- Condition: Long COVID
I am housebound. 3 months passed away already.
In context ↗ - At worst: Moderate
I am housebound.
In context ↗ - Now: Somewhat better
Low histamine diet really helped. Still dealing with brain fog and PEM, fatigue.
In context ↗ - Began after: COVID
what if I got COVID again?
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A Reddit user with long COVID was housebound about three months after onset, lying in bed or on the couch and able to walk only slowly, with heart rate over 150 on too many steps. A low-histamine diet helped, but brain fog, PEM and fatigue kept them from continuing their thesis. They had a severe headache for the first two weeks on ketotifen, and Mestinon three pills daily made no difference by the latest post.
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What they tried
What they credit
Also tried
Their words about each treatment
- Low histamine diet · Helped
Low histamine diet really helped. Still dealing with brain fog and PEM, fatigue.
In context ↗ - ketotifin · Not said
I take ketotifin. Had a huge headache the first two weeks.
In context ↗ - Mestinon · No change
I take three pills of Mestinon every day, but don't see a difference.
In context ↗
Approaches: Diet
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2022-06 (approx.) | long COVID began3 months passed away alreadyIn context ↗ | |
| 2022-09-23 | housebound, lying in bed or on couch, heart rate over 150 after too many stepsI am housebound. ... since 3 months, I am just eating vegetables and potatoes and lying in bed or couch.In context ↗ | |
| 2022-09-26 | low-histamine diet helped, but still brain fog, PEM and fatigue; unable to continue thesisLow histamine diet really helped. Still dealing with brain fog and PEM, fatigue.In context ↗ | Low-histamine diet |
| 2022-12-31 | still taking Mestinon with no differenceI take three pills of Mestinon every day, but don't see a difference.In context ↗ |
Adverse events
- Ketotifen (Zaditen)“I take ketotifin. Had a huge headache the first two weeks.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Still dealing with brain fog and PEM, fatigue.
In context ↗ - Heart symptoms & palpitations
If I went to many steps, my HR would be over 150.
In context ↗ - Anxiety & low mood
Bit the thought to sit in a train and going out made me anxious.
In context ↗ - Headaches & migraine
Had a huge headache the first two weeks.
In context ↗
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