Long COVID unable to read or talk; rest and time helped, then relapsed after vaccination
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 1 year
- Last post
- Jun 2024
In their words
- Condition: Long COVID
then again when I developed LC
In context ↗ - At worst: Severe
Could not read/write or hold a Convo. ... I just had to stop pretty much everything and rest all day.
In context ↗ - Now: Relapsed
8 months for the worst symptoms to clear and one year to mostly recover. I'm about 90% most days ... Vax made me 10X worse than my initial long haul.
Read from 28 of their posts and comments; links to the 15 this page draws on
Summary
Developed long COVID and early on could not read, write or hold a conversation, resting all day. By about a year most symptoms had gone apart from PEM, and they reported being about 90% most days, crediting rest, time, diet and nature for recovery, and psilocybin microdosing for getting their smell back. They later said a COVID vaccination made them 10 times worse and left them disabled.
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What they tried
What they credit
Also tried
Their words about each treatment
- Weed (cannabis) · Helped
Now it's amazing! Helps almost all my symptoms. Only negatives are feeling groggy afterwards and getting somewhat paranoid
In context ↗ - Magic mushrooms (shrooms) · Helped
Magic Mushrooms mixed with aromatherapy is the only thing that helped me. 80% recovered smell now
In context ↗ - Aromatherapy · Helped
Magic Mushrooms mixed with aromatherapy is the only thing that helped me.
In context ↗ - Resting all day / excessive sleep · Helped
I just had to stop pretty much everything and rest all day.
In context ↗ - Calming tea · Helped
calming tea, microdosing, and lots of time
In context ↗ - Clean healthy diet · Helped
eating the cleanest, healthiest food possible (no added sugar, processed junk, etc)
In context ↗ - Time · Helped
8 months for the worst symptoms to clear and one year to mostly recover.
In context ↗ - Mind body exercises · Helped a lot
Mind body exercises have helped tremendously. It's not a cure for 99% of us, though.
In context ↗ - Time in nature · Helped
Tea, time in nature, sun bathing, aromatherapy, herbs, balms, supplements, all work for me.
In context ↗ - Mountain spring water · Helped
I get my water from a mountain spring now, which helps a lot.
In context ↗ - seruquil (Seroquel) · Helped a lot
I took the lowest dose of seruquil for about a month, and it was mostly gone by then.
In context ↗ - Vax · Much worse
Vax made me 10X worse than my initial long haul.
In context ↗
Approaches: Alternative therapies · Brain retraining · Diet · Mind-body practices · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The dashed part: the story doesn’t say when. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | long COVID onset; at worst about 20+ symptoms, had to stop everything and rest all dayI just had to stop pretty much everything and rest all day.In context ↗ | Severe | |
| mid-2023 | most symptoms gone, PEM remainedMost of my symptoms are gone but PEM.In context ↗ | Mild | Time and spontaneous remission |
| 2023-09-01 | about 90% most days after the worst symptoms cleared8 months for the worst symptoms to clear and one year to mostly recover. I'm about 90% most daysIn context ↗ | Near normal | |
| 2023-12-28 | disabled after COVID vaccinationI isolated for months until the vaccine was available and now I'm disabled because of it.In context ↗ | Moderate |
Adverse events
- Cannabis (THC, marijuana)“Couldn't smoke it during the early stages at all. Made me talk symptoms much worse.” In context ↗ Made symptoms worse
- Cannabis (THC, marijuana)“Only negatives are feeling groggy afterwards and getting somewhat paranoid” In context ↗ Side effects
- COVID vaccination as treatment“Vax made me 10X worse than my initial long haul.” In context ↗ Made symptoms worse
- Psilocybin (magic mushrooms)“I can't use them because they constrict my blood vessels too much.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Most of my symptoms are gone but PEM.
In context ↗ - Brain fog
Could not read/write or hold a Convo.
In context ↗ - Loss of smell or taste
My sense of smell was gone until I tried microdosing shrooms.
In context ↗ - Vision problems
Vision went to shit.
In context ↗ - Anxiety & low mood
It's a mixture of depression, DP/DR, inflammation and lack of novel experiences
In context ↗
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