In bed 23 hours a day with long COVID, improved after vaccination then relapsed
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Jun 2025
In their words
- Condition: Long COVID
I did try some probiotics that were supposed to help with long-covid
In context ↗ - At worst: Severe
I was in my bed all day for 2-3 months, too tired to read or watch anything.
In context ↗ - Now: Relapsed
Got COVID again this summer which made me lose all the progress I made the last year (I was working 4 days of 6 hours again, now nothing).
In context ↗ - Began after: COVID
First infection early 2021.
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Developed long COVID after a COVID infection in early 2021 and spent two to three months in bed, too tired to read or watch anything. A first COVID vaccination brought a large improvement within days; they worked part-time again until a reinfection in summer 2022 undid that. By early 2025 they were in bed about 23 hours a day with brain fog, and a gluten-free diet for coeliac disease eased gut symptoms.
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What they tried
What they credit
Their words about each treatment
- COVID vaccine · Helped a lot
After my first vaccine I had a slight flu-ish response for 2 days, after that I could suddenly do stuff.
In context ↗ - gluten-free diet · Helped
if I eat a trace of gluten I have a not so fun toilet trip the next day ... still sometimes now but definitely less
- probiotics (Phyto-V study) · No change
I did try some probiotics that were supposed to help with long-covid (from the Phyto-V study) but I dont see much difference
In context ↗
Approaches: Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps have no time and sit in story order between the steps around them. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early 2021 | COVID infection; bedbound for 2-3 monthsI was in my bed all day for 2-3 months, too tired to read or watch anything.In context ↗ | Severe | |
| 2021 | after first COVID vaccine could eat, walk and work a few hours a dayAfter my first vaccine I had a slight flu-ish response for 2 days, after that I could suddenly do stuff.In context ↗ | Mild | COVID vaccination as treatment |
| 2022 | back to working 4 days of 6 hoursI was working 4 days of 6 hours againIn context ↗ | Mild | |
| summer 2022 | COVID reinfection; lost all progress and stopped workGot COVID again this summer which made me lose all the progress I made the last year (I was working 4 days of 6 hours again, now nothing).In context ↗ | Moderate | |
| 2025-01 | in bed about 23 hours a day with brain fog; a bit worse recentlyI'm in bed 23hours a day and have brain issues too so I'm a bit slow nowIn context ↗ | Severe |
Adverse events
- COVID vaccination as treatment“After my first vaccine I had a slight flu-ish response for 2 days” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I have lost my brain, I can't retain new information or think properly anymore.
In context ↗ - Gut problems
that's what I looked like with undiagnosed celiac for years. And still sometimes now but definitely less
In context ↗ - Hair loss
My hair kept breaking off and falling out
In context ↗
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