Long COVID
Much betterIll 3 months before improving or writing
Severe confusion and dementia-like long COVID, now much better but still brain fog
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 3 months
- Last post
- Dec 2021
In their words
- Condition: Long COVID
although now I have long haulers
In context ↗ - Now: Much better
Physically doing great, neurologically still a fight!
In context ↗ - Began after: COVID
I developed severe confusion and “dementia like” symptoms after COVID.
Summary
A Reddit user who developed long COVID around September 2021, with severe confusion and 'dementia-like' symptoms, depersonalisation, and eight days in hospital. Three months on they were physically doing great but still fighting depression, anxiety and brain fog, crashing for a day or two after overdoing things. A two-week steroid trial for suspected adrenal failure came back negative and weaning off was almost as horrific as COVID.
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What they tried
Their words about each treatment
- steroids · Not said
while we waited for the results I was put on steroids. After two weeks on steroids the results came back negative and I had to wean off
In context ↗ - Hydrocortisone / cortisol · Not said
After two weeks on steroids the results came back negative and I had to wean off, which was almost as horrific as having Covid
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| ~September 2021 | COVID-19 with severe confusion and 'dementia-like' symptoms; 8 days in hospitalI developed severe confusion and “dementia like” symptoms after COVID. ... (8 days in hospital) | Severe |
| 2021, before 22 December | two-week steroid trial for suspected Addison's; negative tests; weaned offAfter two weeks on steroids the results came back negative and I had to wean off, which was almost as horrific as having CovidIn context ↗ | Severe |
| 2021-12-26 | physically doing great; depression, anxiety and brain fog remain; crashes a day or two after overdoingPhysically doing great, neurologically still a fight! ... it’s much better | Mild |
Adverse events
- Hydrocortisone / cortisol“After two weeks on steroids the results came back negative and I had to wean off, which was almost as horrific as having Covid” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Brain fog
now I’m fighting depression, anxiety and brain fog.
In context ↗ - Anxiety & low mood
It’s better (3 months out), but now I’m fighting depression, anxiety and brain fog.
In context ↗ - Post-exertional malaise
I tend to go gang buster on days I feel functional, and then pay for it the next day or two.
In context ↗