ME/CFS
Outcome unclear
Mild-moderate ME/CFS: top surgery, little impact on PEM or pain, happy with results
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
It didn't have much impact on my PEM or pain.
In context ↗ - At worst: Moderate
I was mild-moderate (but undiagnosed) at the time
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They described themselves as mild-moderate and undiagnosed when they had top surgery in June 2024, and reported a standard recovery. Some pressure-sore-like wounds and stitches opening led to atypical scarring, though it did not affect their results. The surgery had little impact on their PEM or pain, and they were happy with how it came out.
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What they tried
Also tried
Their words about each treatment
- surgery · No change
I was mild-moderate (but undiagnosed) at the time and had a standard recovery. ... It didn't have much impact on my PEM or pain.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS, undiagnosedI was mild-moderate (but undiagnosed) at the timeIn context ↗ | Not stated |
| June 2024 | top surgery with standard recovery, no change in ME/CFSIt didn't have much impact on my PEM or pain.In context ↗ | Mild |
Adverse events
- Other surgery (adrenal, lung, venoplasty)“I had developed some pressure-sore-like wounds and had some stitches open, that lead to atypical scarring” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
It didn't have much impact on my PEM or pain.
In context ↗