Anyone recovered after discovering residential toxic mold exposure?
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 12 years
- Published
- Jun 2010
Summary
After 12 years of mostly-disabling CFS, including a final year spent bedridden 18-22 hours a day, she relocated to avoid mold/biotoxin exposure (living in a tent, then an RV, in the desert) alongside neural therapy, detox and antivirals. She says classic Canadian-Criteria CFS patients including herself "have recovered or experienced substantial improvements" from addressing mold/biotoxins, but in a 2014 follow-up on the same thread frames it conditionally — "If I can avoid biotoxins really well, I am well" — and notes she still cannot visit certain cities/locations without relapsing, so the gain is real but strictly contingent on continued strict avoidance rather than a cure.
What they credit
Credits Alternative therapies, Antivirals, Mould avoidance, Famvir / famciclovir (Pridgen), Mold avoidance / CIRS protocol, Relocation and environmental change, Valcyte / valganciclovir.
Similar stories
-
Julie Rehmeyer's Mold Avoidance Recovery Story
Took a two-week mold sabbatical in Tecopa, California, combined with a modified Pridgen Protocol of valtrex 500mg plus celebrex 200mg, for ME/CFS confirmed by two-day exercise testing (originally diagnosed as fibromyalgia). Had been unable to exercise…
-
Do CFS Patients Ever Get TRULY Well?
Combined a mold-avoidance protocol with cholestyramine taken in low-mold locations, three months of doxycycline for Lyme, Famvir, and then Valcyte started about three weeks before posting. Says she reached full wellness roughly a year before this post, with…
-
Björn recovered from severe ME with antivirals (valganciclovir, ritonavir and isentress)
Ran a long multi-drug protocol: valganciclovir at 450mg twice daily for a year then a lower maintenance dose for another 8 months, repeated after HHV-6 reactivated again; famciclovir 500mg three times daily for 6 months; gammaglobulin infusions every three…
-
ME/CFS, Valcyte, and me: Third time lucky
Tracy has tried valganciclovir (Valcyte) three times for ME/CFS: a six-month course in 2014 (three weeks of induction at two 450mg pills twice daily, then two pills once daily) cut short by an allergic reaction after switching to a generic mid-course; a…