How it went
Did it last?
- 3 of 19 said the benefit wore off (including the 2 who relapsed).
- 2 of 19 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 3 | 16% |
| Near-full | 3 | 16% |
| Substantial | 6 | 32% |
| Partial | 5 | 26% |
| Relapsed | 2 | 11% |
| No benefit | 0 | 0% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 1 | 0% | |
| Severe | 10 | 40% | |
| Very severe | 5 | 40% |
3 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
All 19 accounts
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Matt Sibert
Matt Sibert credits reading Dr. John Sarno's books The Divided Mind and The Mindbody Prescription, then practicing somatic tracking, somatic meditations, expressive writing/journaling, breathing exercises and general meditation, after an earlier…
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ME/CFS in Remission from Mold Avoidance
After becoming severely ill with ME/CFS by late 2020 — to the point that even a shower risked triggering post-exertional malaise — he discarded all possessions, bought new clothes and a car, and relocated from a New York City apartment to a travel trailer in…
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Speaking of the desert...who here has went there and how long did you stay for before improving?
He reports having "improved a lot" both in the desert and in very remote, wet temperate forests, theorizing that mold produces worse toxins when it contacts agricultural or industrial chemicals and that outdoor air quality matters more than climate type…
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Charcoal increased my energy immediately - what does this mean?
Unable to tolerate charcoal at all, she instead used apple pectin with oats alongside a relocation and a broader medication protocol for MCAS and prior mold-related illness, reporting only "mild improvement" that can't be cleanly attributed to any one…
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Full Recovery of 27 Severe Mycotoxicosis Patients (O2 / FIR / Sups / Antifungal / AIET) + POLL
On a Shoemaker-based CIRS protocol built around cholestyramine (the only conventional medicine she tolerated), plus FIR sauna and liposomal glutathione, and after relocating to a house with an ERMI in the lowest 25th percentile, she reports now passing the…
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M.E., My Mold, and I: A Story of ME/CFS and Toxic Mold
Over nearly seven years of ME/CFS beginning in late summer 2010, she tried pacing with a heart-rate monitor and many supplements, including herbal antivirals, for about a year, then added neurotransmitter support (dopamine, GABA), an ATP Fuel supplement,…
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Is Mold Making You Sick?
The article gives no specific drugs, supplements, binders, or formal medical protocol that Julie used; the one intervention described is behavioral — she spent two weeks in Death Valley with none of her own belongings to test whether mold exposure was…
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"Death Rider": A (Hopeful) Mold Illness Story
After moving into a moldy house around 2011, former endurance cyclist Chris Graber declined over several years into a wheelchair- and oxygen-dependent state with a central IV line, initially misdiagnosed as Lyme disease. Once Dr. Ritchie Shoemaker identified…
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After Spending 200K Joey Finds His Simple Solution
Joey, a high-functioning professional, became bedridden with ME/CFS after mononucleosis and spent over $200,000 on treatments across about six years with little benefit. He eventually pursued extreme mold avoidance, including desert camping and living in a…
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Julie Rehmeyer's Mold Avoidance Recovery Story
Took a two-week mold sabbatical in Tecopa, California, combined with a modified Pridgen Protocol of valtrex 500mg plus celebrex 200mg, for ME/CFS confirmed by two-day exercise testing (originally diagnosed as fibromyalgia). Had been unable to exercise…
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Julie Rehmeyer's Mold Avoidance Recovery Story
Science journalist Julie Rehmeyer developed ME/CFS gradually from around 2006 and became mostly bedbound. A ten-day trip to Death Valley without her belongings led her to suspect mold sensitivity, and she recovered substantially through rigorous mold…
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Rambler's Mold Avoidance Experiments
After needing stimulants just to leave his moldy San Francisco house for four years, strict mold avoidance for about two weeks brought sleeping through the night, less brain fog, clearer vision, more morning energy and almost no tingling in his hands and…
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Constant Vigilance: Julie Rehmeyer's Chronic Fatigue Syndrome Recovery Story
Julie Rehmeyer, a science journalist, saw her health decline from 1999, had full-blown ME/CFS by 2006 and by 2011 could barely get from bed to the bathroom. She credits extreme mold avoidance, including a bare-bones retreat to Death Valley and discarding…
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From Despair to Life Again: HealClick Founder Joey's ME/CFS Story
Joey Tuan, founder of the patient site HealClick, had been so ill he sometimes needed a wheelchair and once could not walk ten minutes without two days of payback, with severe chemical sensitivities, after spending over $200,000 on treatments. He credits…
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A Remarkable Recovery Story
Paul, unable to attend school and mostly couch-bound after a flu at 12 that became ME/CFS, saw energy rise within 4 days of moving to Costa Rica with his family, progressing from barely standing 10 minutes to hour-long beach walks and 120 daily sit-ups…
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Anyone recovered after discovering residential toxic mold exposure?
After 12 years of mostly-disabling CFS, including a final year spent bedridden 18-22 hours a day, she relocated to avoid mold/biotoxin exposure (living in a tent, then an RV, in the desert) alongside neural therapy, detox and antivirals. She says classic…
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List of ME/CFS Recovery and Improvement Stories
Paul is listed reaching near-remission within 4 days of moving to Costa Rica from moderate-severe illness, but relapsing when back in Canada and returning to remission only once back in Costa Rica - an improvement explicitly tied to (and only lasting within)…
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Maya's Story
She recovered through functional medicine (addressing mold exposure, liver toxicity and nutrient depletion), psychotherapy, physiotherapy, and a daily body-scan meditation practiced three times a day, later training as a Functional Medicine Certified Health…
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Beth French's Journey from ME/CFS to Ultra-Marathon Swimmer
Credits trauma and somatic work, meditation and relocation. Beth was ill 10y with very-severe ME/CFS and is described as fully recovered. Later swam the Channel; credits meditation and motherhood.