How it went
Did it last?
- 2 of 50 said the benefit wore off (including the 1 who relapsed).
- 6 of 50 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 7 | 14% |
| Near-full | 6 | 12% |
| Substantial | 20 | 40% |
| Partial | 14 | 28% |
| Relapsed | 1 | 2% |
| No benefit | 2 | 4% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 4 | 25% | |
| Severe | 19 | 26% | |
| Very severe | 10 | 30% |
17 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
Specific treatments in these accounts
- TreatmentHow it wentRecoveredFaded
- Mold avoidance / CIRS protocol50 accounts
26% 4%
- Relocation and environmental change13 accounts
23% 0%
- Lyme / co-infection protocols7 accounts
29% 14%
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)6 accounts
67% 0%
- Antifungals4 accounts
0% 0%
- B12 injections and methylation4 accounts
0% 0%
- NAC and glutathione4 accounts
0% 0%
- Valcyte / valganciclovir3 accounts
33% 0%
- Doxycycline and other antibiotics3 accounts
67% 0%
- Elimination and ketogenic diets3 accounts
0% 0%
- Herbal and Chinese medicine3 accounts
0% 33%
- Pacing and the energy envelope3 accounts
67% 0%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
Side effects and harms people mentioned
Found by scanning the summaries for side-effect language, so this list is incomplete and may include a mention that isn’t about Mould avoidance itself. Read the story before drawing conclusions.
- Financial cost
Joey, a high-functioning professional, became bedridden with ME/CFS after mononucleosis and spent over $200,000 on treatments across about six years with little benefit.
- Refeeding or deficiency problems
Within three weeks of refeeding he had regained the weight, and his old headaches returned once he resumed his glutathione and fenbendazole regimen, leaving the benefit only partly sustained.
All 50 accounts
-
Recovery Protocol Cheat Sheet
Christy's posted recovery protocol lists an extensive regimen: pre-protocol, three months of Eliquis 5 mg daily and clopidogrel 75 mg daily; from February 2024 a "foundation" of nutritional antivirals including matcha green tea, coconut oil, unpasteurized…
-
162: She Tried Everything for Lupus, Mold & Chronic Fatigue... Only This Worked (Lori Clemmons' Story)
Credits brain retraining. Lori had ME/CFS and is described as fully recovered. Comorbid lupus and mold illness.
-
Flo Stops the Leaks in Her Boat at Last
Flo became ill with ME/CFS and fibromyalgia after mold exposure roughly thirty-seven years before the post, at her worst unable to watch TV, read or follow conversations, with regular vertigo. Years of craniosacral therapy, PRP injections, hydrogen peroxide…
-
Amber's Long MCAS, POTS, MCS, ME/CFS Recovery Story
Amber had digestive and allergy problems since childhood that became severe MCAS, POTS, MCS and ME/CFS after a marathon at thirty and a bad flu-shot reaction at thirty-one, leaving her homebound and fainting daily despite seeing more than a hundred doctors.…
-
Very Severely Ill ME/CFS Patient Gets a New Diagnosis and Major Improvement
James, a former fitness trainer, became mostly bedbound over 6 to 10 years despite seeing dozens of doctors. Testing eventually pointed to chronic inflammatory response syndrome rather than straightforward ME/CFS. Following a Shoemaker-based CIRS protocol he…
-
List of ME/CFS Recovery and Improvement Stories (page 4 discussion)
marlunette improved from moderate to mild with mold avoidance, then from mild to remission after adding B12 injections and a B-complex/micronutrient regimen, with a 25-year-old exercise-induced asthma resolving as a bonus. Separately, in the…
-
ME/CFS in remission from Mold Avoidance
Despite comorbid craniocervical instability, mold avoidance "still helped" and affected symptoms like sound sensitivity and POTS, which he calls "the most impressive [treatment] I've done YET." He says he never achieved full remission from mold avoidance…
-
ME/CFS in Remission from Mold Avoidance
After becoming severely ill with ME/CFS by late 2020 — to the point that even a shower risked triggering post-exertional malaise — he discarded all possessions, bought new clothes and a car, and relocated from a New York City apartment to a travel trailer in…
-
Recovery stories: parasites cleanse
In 2006, took Paragone (an herbal antiparasitic supplement) for a couple of months alongside a very-low-carb diet, and reports it "cut the brain fog I'd grown up with by about 70%." Explicit that this did not touch the underlying ME/CFS, which they attribute…
-
List of ME/CFS Recovery and Improvement Stories (page 9 discussion)
Woof! moved from severe to moderate ME/CFS through strict avoidance of a long, specific list of dietary and environmental triggers rather than any single drug or supplement. No further detail on duration of illness or long-term durability beyond the…
-
Zinc is reducing my hypersensitivity to smells!
After roughly 10 years of chemical/mold hypersensitivity following a copper IUD placement, she took zinc at 50mg/day for two months alongside magnesium. For the first time since her mold exposure, her "instant sense of inflammation and headache" from…
-
Health Update #4: Recovery is a %*#*&$@!
Jennifer Brea had been managing severe ME for about 8 years with Valcyte, Valtrex, Mestinon, and fludrocortisone plus mold avoidance, which had only brought her from severe to moderate; in November 2018 she underwent three surgeries over six weeks — a…
-
Speaking of the desert...who here has went there and how long did you stay for before improving?
He reports having "improved a lot" both in the desert and in very remote, wet temperate forests, theorizing that mold produces worse toxins when it contacts agricultural or industrial chemicals and that outdoor air quality matters more than climate type…
-
Speaking of the desert...who here has went there and how long did you stay for before improving?
After becoming bedridden with ME/CFS in 1997, years in remote alternative housing and then two years under a carport next to a moldy house helped him go from bedridden to "somewhat functional," able to socialize and do light work. Moving into a newly built,…
-
Charcoal increased my energy immediately - what does this mean?
Unable to tolerate charcoal at all, she instead used apple pectin with oats alongside a relocation and a broader medication protocol for MCAS and prior mold-related illness, reporting only "mild improvement" that can't be cleanly attributed to any one…
-
Full Recovery of 27 Severe Mycotoxicosis Patients (O2 / FIR / Sups / Antifungal / AIET) + POLL
On cholestyramine and two months away from home while addressing a broad B-vitamin deficiency found on testing (which he attributes partly to cholestyramine binding nutrients), he reports improvement has been minimal, "without much improvement," and adjusted…
-
Full Recovery of 27 Severe Mycotoxicosis Patients (O2 / FIR / Sups / Antifungal / AIET) + POLL
After testing positive for several mycotoxins, he moved out of his home for 10 weeks and took chlorophyll and activated charcoal, but "noticed no effect" on his ME. He had previously had two complete recoveries with full triathlon training and zero symptoms…
-
Full Recovery of 27 Severe Mycotoxicosis Patients (O2 / FIR / Sups / Antifungal / AIET) + POLL
On a Shoemaker-based CIRS protocol built around cholestyramine (the only conventional medicine she tolerated), plus FIR sauna and liposomal glutathione, and after relocating to a house with an ERMI in the lowest 25th percentile, she reports now passing the…
-
M.E., My Mold, and I: A Story of ME/CFS and Toxic Mold
Over nearly seven years of ME/CFS beginning in late summer 2010, she tried pacing with a heart-rate monitor and many supplements, including herbal antivirals, for about a year, then added neurotransmitter support (dopamine, GABA), an ATP Fuel supplement,…
-
Is Mold Making You Sick?
The article gives no specific drugs, supplements, binders, or formal medical protocol that Julie used; the one intervention described is behavioral — she spent two weeks in Death Valley with none of her own belongings to test whether mold exposure was…
-
"Death Rider": A (Hopeful) Mold Illness Story
After moving into a moldy house around 2011, former endurance cyclist Chris Graber declined over several years into a wheelchair- and oxygen-dependent state with a central IV line, initially misdiagnosed as Lyme disease. Once Dr. Ritchie Shoemaker identified…
-
After Spending 200K Joey Finds His Simple Solution
Joey, a high-functioning professional, became bedridden with ME/CFS after mononucleosis and spent over $200,000 on treatments across about six years with little benefit. He eventually pursued extreme mold avoidance, including desert camping and living in a…
-
Serrapeptase gives me more energy and no brain fog, why?
One capsule of 40,000 SPU serrapeptase before meals produced, within 4-5 hours and lasting 2-3 days, a jump in energy, sharper focus, no brain fog, reduced depression, better skin and relief from sinusitis and mold/chemical itching, according to this poster;…
-
Biotoxin Journey
Gregory Muske's account names few specifics, but he mentions taking binders and, more recently, VIP (vasoactive intestinal peptide), without giving doses; a commenter asks whether he completed the Shoemaker protocol, which he doesn't clearly confirm. He…
-
The Master Cleanse
Fourteen years into CFS and CIRS (also citing heavy metal toxicity, mold and Lyme disease), Eric documented a roughly 25-day Master Cleanse of lemon juice, maple syrup and cayenne, adding psyllium and bentonite shakes and continuing some supplements against…
-
Preventing Sleep Apnea Therapy was Miracle Cure for Me
After roughly 15 years of brain fog, mold sensitivity, daytime sleepiness and exhaustion she attributed to self-diagnosed ME, Mary Jane Reyes began using Provent, an adhesive nasal-valve device for sleep apnea. Within a few nights of use she reports "all of…
-
News about mould. What helped you, can it help me …?
Combining Gupta Retraining, the DNRS/Hooper protocol, and a Klinghardt-style regimen of intranasal myrrh followed by propolis-cream nasal blocking, plus isopropanol spraying and frequent tissue changes for ongoing mould exposure at home, she describes nine…
-
Julie Rehmeyer's Mold Avoidance Recovery Story
Science journalist Julie Rehmeyer developed ME/CFS gradually from around 2006 and became mostly bedbound. A ten-day trip to Death Valley without her belongings led her to suspect mold sensitivity, and she recovered substantially through rigorous mold…
-
Rambler's Mold Avoidance Experiments
After needing stimulants just to leave his moldy San Francisco house for four years, strict mold avoidance for about two weeks brought sleeping through the night, less brain fog, clearer vision, more morning energy and almost no tingling in his hands and…
-
Feeling amazing after getting out of Mold/Mycotoxin home
After moving out of a mold/mycotoxin-contaminated home and combining methylation supplements, antifungals/antibiotics/antiparasitics, a bentonite clay binder and multiple hyperbaric oxygen sessions, she reports "amazing improvements" over the preceding month…
-
Constant Vigilance: Julie Rehmeyer's Chronic Fatigue Syndrome Recovery Story
Julie Rehmeyer, a science journalist, saw her health decline from 1999, had full-blown ME/CFS by 2006 and by 2011 could barely get from bed to the bathroom. She credits extreme mold avoidance, including a bare-bones retreat to Death Valley and discarding…
-
From Despair to Life Again: HealClick Founder Joey's ME/CFS Story
Joey Tuan, founder of the patient site HealClick, had been so ill he sometimes needed a wheelchair and once could not walk ten minutes without two days of payback, with severe chemical sensitivities, after spending over $200,000 on treatments. He credits…
-
Better Health Guy: My Story
This page does not name any specific drugs, doses, procedures, or protocols Scott Forsgren used, stating only that he worked with doctors and other practitioners over the years. He describes his chronic illness as lasting nearly thirty years, with a…
-
Pat Gurnick Learned How to Get Well from CFS
Pat Gurnick's main treatment was the Guaifenesin Protocol (developed by Dr. Paul St. Amand), followed for 1.2 years, alongside the antiviral Kutapressin and pacing and self-regulation techniques from Dr. William Collinge's CFS book, plus staying within her…
-
progess report..feeling almost normal
About 1.5 years into severe illness (bedridden, lightheaded, shaking, forced to leave her home), she combined cholestyramine and Valtrex for 4 months, methylB12 injections tapering from daily to every other day over 4 months, plus ongoing sublingual…
-
CityChanger's Mold Avoidance Update
Continuing her mold-avoidance approach and testing many locations to map her own reactivity, she reports becoming progressively less reactive to most types of mold the longer she avoids exposure, saying "as time has gone on, I've become less reactive to most…
-
CityChanger's Mold Avoidance Update
An 11-day open-ocean cruise with daily sea air brought him more energy, better sleep and the ability to work out vigorously every other day, which he describes as "significant and noticeable" but "not dramatic" — a modest, one-time observation rather than a…
-
CityChanger's Mold Avoidance Update
Camping in a tent on a friend's remote mountain property over several weeks left her hiking, "full of energy" and mentally active, but a single outing into town (including a Whole Foods visit) "slammed" her within hours, triggering orthostatic intolerance,…
-
Anyone recovered after discovering residential toxic mold exposure?
Living with severe mold-induced asthma and food sensitivities more than five years after her exposure, she pursued mold avoidance by living in a tent or van and discarding contaminated belongings. She reports improvement only when she manages to stay in…
-
Anyone recovered after discovering residential toxic mold exposure?
After 12 years of mostly-disabling CFS, including a final year spent bedridden 18-22 hours a day, she relocated to avoid mold/biotoxin exposure (living in a tent, then an RV, in the desert) alongside neural therapy, detox and antivirals. She says classic…
-
Anyone recovered after discovering residential toxic mold exposure?
A naturopath-supervised candida-free diet plus mold avoidance and herbal supplements left her "almost symptom free" for about two years, "though not cured." Major life stresses then triggered a relapse and she "became horribly ill again," so the substantial…
-
Do CFS Patients Ever Get TRULY Well?
Combined a mold-avoidance protocol with cholestyramine taken in low-mold locations, three months of doxycycline for Lyme, Famvir, and then Valcyte started about three weeks before posting. Says she reached full wellness roughly a year before this post, with…
-
Erik Johnson - Paradigm Change
Erik Johnson's treatment was a strict mold-avoidance protocol he refined in 1998, adapting bioweapons-decontamination techniques he had learned in the US Army to eliminate even trace cross-contamination from mold toxins; no drugs, supplements or devices are…
-
List of ME/CFS Recovery and Improvement Stories
Doug, whose ME/CFS was linked to mold exposure, is listed as "more or less cured" on daily inosine and DMAE plus other supplements, per the compiled list.
-
Connie's full recovery story from CFS and CIRS – and why grit is overrated
Credits brain retraining. Connie had ME/CFS and is described as fully recovered. Comorbid CIRS/mold illness.
-
Primal Trust testimonials: Lainie Glenn
Credits brain retraining. Lainie had ME/CFS and reports a partial improvement. Lyme, mold, CFS and TBI; 30-60% functionality under 2 months.
-
Primal Trust testimonials: Tess Leander
Credits brain retraining. Tess had ME/CFS and is described as fully recovered. CFS, mold and Lyme; claims totally symptom-free.
-
Cedar Brown's Story
She recovered from ME/CFS, alongside POTS, mold illness, IBS and anxiety, using a combination of Low Dose Naltrexone (LDN), the Edison Effect Program by Anj Garneri, Trauma Healing Accelerated and somatics work, pacing, IFS parts work and mold remediation,…
-
Jeri's Amazing Discovery
Filed under the mold and environmental category, the page's title calls Jeri's discovery of mold avoidance amazing, but only a short excerpt could be retrieved. In it she argues that because mold avoidance has been a clue since the syndrome was first…
-
Lisa Petrison - Paradigm Change
The page names no drugs, supplements, doses or devices for Lisa Petrison; the only treatment described is avoidance of mold toxins and other environmental exposures, a focus she adopted from 2008 onward. She had been ill with ME since before 1998, became…