Bedridden with ME/CFS for five years, now much better
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 years
- Last post
- Mar 2024
In their words
- Condition: ME/CFS
I've been bed ridden for 5 years.
In context ↗ - At worst: Severe
I've been bed ridden for 5 years.
In context ↗ - Now: Much better
About a month I have been out of bed. ... I feel so healthy
In context ↗
Summary
They had been bedridden for five years by March 2024, describing their bed as their coffin and pain so bad they could not see straight. After about a month of getting out of bed they reported feeling healthy, though they had caught COVID a week earlier and still spent many hours in bed. No treatment was reported.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 4.9 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2019 | illness began, later bedriddenI've been bed ridden for 5 years.In context ↗ | Not stated |
| — | bedridden for five yearsMy bed was my coffin.In context ↗ | Severe |
| February 2024 | first days out of bed after five yearsThe first day I left my bed.In context ↗ | Severe |
| March 2024 | out of bed about a month, walking and riding busesAbout a month I have been out of bed.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
Pain is so terrible. It can fuck your life up to the point of not seeing straight.
In context ↗ - Sleep problems
Knees weak, I couldn't sleep, I lied, saying everything was fine.
In context ↗ - Muscle weakness
Knees weak, I couldn't sleep
In context ↗