ME/CFS improved for five months on B12 and amantadine, then relapsed and unable to move
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2015
In their words
- At worst: Severe
now complete relapse. Can't move ... now I'm back at 5%
- Now: Relapsed
Did some construction on my moms house and now I'm back at 5%.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A person with CFS said B12 injections, amantadine and Brintellix seemed to add up to being at about 70%, able to do a lot, and they felt better for five months. After doing construction work on their mother's house they relapsed completely, saying they could not move and were back at 5%. Restless legs and neuropathic pain were the symptoms being treated.
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What they tried
Also tried
Their words about each treatment
- Bvitamins · Helped
Bvitamins work for me, but I'm sure what I buy has much better ingredients.
In context ↗ - provigil · Helped
I take 10mg of provigil - microdoses really help.
In context ↗ - B12 injections · Helped
And b12 injections made a difference for me.
In context ↗ - Amantadine · Helped
Amantadine for restless leg, Brintellix for neuropathic pain, B12 injections all seemed to add up to me being at about 70%.
In context ↗ - Brintellix · Helped
Brintellix for neuropathic pain, B12 injections all seemed to add up to me being at about 70%.
In context ↗
Approaches: Other antidepressants · Other drugs and medicines · Stimulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| by May 2015 | felt better for five months, about 70% function, able to do a lotAmantadine for restless leg, Brintellix for neuropathic pain, B12 injections all seemed to add up to me being at about 70%. Able to do a lot.In context ↗ | Mild | Vitamin B12 |
| 2015-05-26 | complete relapse after doing construction on their mother's house; back at 5%Did some construction on my moms house and now I'm back at 5%.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
Brintellix for neuropathic pain
In context ↗ - Sleep problems
Amantadine for restless leg
In context ↗ - Post-exertional malaise
Did some construction on my moms house and now I'm back at 5%.
In context ↗
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