ME/CFS
Moderate → no benefitIll for 8 years
Constant fatigue and brain fog with ME/CFS, no improvement from yoga or workouts
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 8 years
- Last post
- Aug 2023
In their words
- At worst: Moderate
There are days where I can’t even stand or sit up for long periods of time because my body is so exhausted.
In context ↗ - Now: No benefit
these periods of illness and fatigue never disappeared
In context ↗
Summary
Someone who has had constant fatigue since age 15, with muscle and knee/back pain, brain fog, dizziness, nausea and recurrent infections; doctors have not officially diagnosed them, and some suggest it could be psychosomatic. They try yoga when able; an iron infusion corrected anaemia but the fatigue continued, and workouts did not make them feel better.
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What they tried
Also tried
Their words about each treatment
- gym · Worse
I used to go to the gym and as heavy as I could ... The DOMS and fatigue from one workout would put me out for weeks at a time
In context ↗ - yoga · Worse
There are days where yoga absolutely kills my body bc holding positions for long periods of time hurt my muscles
In context ↗ - an infusion · No change
I’ve had anemia but even though I got an infusion and my levels were normal, these periods of illness and fatigue never disappeared
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 15 | constant fatigue began in teensI’ve been suffering from consistent fatigue since I was about 15.In context ↗ | Not stated |
| — | days unable to stand or sit up, collapsed many timesThere are days where I can’t even stand or sit up for long periods of time because my body is so exhausted.In context ↗ | Moderate |
| — | one gym workout put them out for weeksThe DOMS and fatigue from one workout would put me out for weeks at a timeIn context ↗ | Moderate |
| August 2023 | still ill, eating small portions through the day, yoga or Pilates when ablei have to eat throughout the day or I begin to feel Weak and faint so I try to have smaller portionsIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
The DOMS and fatigue from one workout would put me out for weeks at a time
In context ↗ - Brain fog
Nausea, dizziness, brain fog, pain etc has been consistent.
In context ↗ - POTS & dysautonomia
I’ve collapsed many times in the past.
In context ↗ - Muscle weakness
There are days where I can’t even stand or sit up for long periods of time because my body is so exhausted.
In context ↗ - Flu-like symptoms
I easily catch infections and have a history of multiple strep throat infections within a year.
In context ↗