Bedridden for days by ME/CFS crashes, much better with energy management and vitamin D
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 13 years
- Last post
- Jun 2025
In their words
- Condition: ME/CFS
I was diagnosed with CFS after a bad case of mono
In context ↗ - At worst: Mild
Several years ago I would have several crashes a month and be bedridden for days.
In context ↗ - Now: Much better
I finally had a crash after almost a year of being in remission ... I would get an occasional crash once or twice a year for 24-48hrs
In context ↗ - Began after: glandular fever or EBV
I was diagnosed with CFS after a bad case of mono
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Falcon 52099 developed CFS after mono at 19. Several years ago they had several crashes a month and were bedridden for days. Managing their energy and taking vitamin supplements, including vitamin D, left them immensely better, with one or two 24-48 hour crashes a year. In June 2025, after almost a year in remission and family stress, they crashed again, exhausted for days and barely able to get out of bed.
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What they tried
Also tried
Their words about each treatment
- managing my energy · Helped
Now I just manage my energy and take vitamin supplements but I feel immensely better.
In context ↗ - Vitamin D · Helped
Vitamin D was the most helpful for me personally for energy.
In context ↗ - prenatal vitamins · Helped
My doctor also prescribed prenatal vitamins when I was deficient and that also made a difference
In context ↗ - magnesium/calcium/zinc · Helped
I also take magnesium/calcium/zinc occasionally just to calm my anxiety and allow my body to fully relax.
In context ↗ - fish oil pills · Helped
Fish oil pills also has helped me with clearing my foggy brain and focusing but I haven’t been as consistent.
In context ↗ - medication for generalized anxiety · Helped a lot
started medication which made a world of a difference
In context ↗
Approaches: Pacing · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| age 19 | mono followed by years of CFS symptomsI had symptoms for years, since I got mono at 19In context ↗ | |
| several years before 2025 | several crashes a month, bedridden for daysSeveral years ago I would have several crashes a month and be bedridden for days.In context ↗ | |
| — | immensely better after managing energy and vitamin supplements; only occasional crashesNow I just manage my energy and take vitamin supplements but I feel immensely better.In context ↗ | Vitamin D and sun exposure |
| 2024-2025 | almost a year in remission, best in a long timeI finally had a crash after almost a year of being in remissionIn context ↗ | |
| 2025-06-25 | crashed at the end of the academic year; exhausted for days, working from bedmy body has suddenly felt exhausted for several days. I can barely get out of bed.In context ↗ |
Adverse events
- “I recently got a tetanus shot and besides the soreness I was OK… Just took it easy for the few days after I did not push myself too much!” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Several years ago I would have several crashes a month and be bedridden for days.
In context ↗ - Sleep problems
All I want to do is sleep. I took a sick day today and napped for 5 hours
In context ↗ - Brain fog
Fish oil pills also has helped me with clearing my foggy brain and focusing
In context ↗ - Anxiety & low mood
My anxiety was through the roof which lead to being diagnosed with generalized anxiety
In context ↗
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