Long COVID
Severe → somewhat betterIll 15 months before improving or writing
Largely bedridden for seven months with long COVID, now somewhat better
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 15 months
- Last post
- May 2021
In their words
- Condition: Long COVID
Been a Long Hauler ever since.
In context ↗ - At worst: Severe
April - Oct essentially bed ridden with massive chest pain 24 hours a day and debilitating fatigue
In context ↗ - Now: Somewhat better
Fast forward to today it’s been 15 months and I am still maybe 20% on a good day and if I do more than 25 minutes of anything - bam - more chest pain.
In context ↗ - Began after: COVID
and yet I’m completely debilitated from COVID.
Read from 8 of their posts and comments; links to the 8 this page draws on
Summary
A 49-year-old fit man fell ill with COVID in March 2020 and spent about seven months largely bedridden with crushing fatigue and severe chest and lung pain. From summer 2020 he improved slowly and from November had about 60 days of near-normal life before a relapse in early 2021. By May 2021 daily life was better, but 20 minutes of anything still put him in bed for hours and he rated himself about 20% on a good day.
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What they tried
Also tried
Their words about each treatment
- 3lb dumbbells for some curls and shoulder press · Not said
I’ve used 3lb dumbbells for some curls and shoulder press!
In context ↗ - Vipassana meditation and Wim Hof breathing · Not said
I’ve discovered Vipassana meditation and Wim Hof breathing - love both of them.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2020 | fell ill with COVIDGot sick March 23rd.In context ↗ | Moderate |
| April-May 2020 | bedridden with chest pain and crushing fatigueCompletely bed ridden. Crushing fatigue.In context ↗ | Severe |
| June-July 2020 | symptoms eased only if he did nothingJune and July everything eased a bit but only if I did nothingIn context ↗ | Severe |
| September 2020 | a few hours of light activity a day; 3lb dumbbellsnow I get a few hours per day of light activity with 21 hours of restIn context ↗ | Severe |
| November 2020 - January 2021 | 60 days where he could live againDec, Jan a basically had 60 days where I could live again.In context ↗ | Mild |
| late January 2021 | relapse after 60 good dayslast 10 days an awful relapse. No where as bad as my worst 7 months but it’s bad enough to keep me resting most of the dayIn context ↗ | Moderate |
| May 2021 | daily life better but exertion still puts him back in bedEssentially 20 minutes of anything puts me right back in bed for a few hours.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I do more than 25 minutes of anything - bam - more chest pain
In context ↗ - Heart symptoms & palpitations
April, May, June! July, Aug it was level 10 24/7
In context ↗ - Pain & fibromyalgia
All of April and May horrible chest pain, lung pain and crushing fatigue
In context ↗ - Muscle weakness
left with crushing fatigue if I do too much
In context ↗