3-4 years of mental fatigue, somewhat better with Sunosi
- Condition
- Condition not stated
- At worst
- Not stated
- Ill before improving or writing
- 3.5 years
- Last post
- Jul 2022
In their words
- Condition: Condition not stated
I am still not sure if i have ME/CFS
In context ↗ - Now: Somewhat better
Sunosi on the other hand just makes the exhaustion less severe
In context ↗ - Says they never had: POTS & dysautonomia
I do not suffer from many of the hallmarks (orthostatic intolerance, pain, physical fatigue)
- Says they never had: Pain & fibromyalgia
I do not suffer from many of the hallmarks (orthostatic intolerance, pain, physical fatigue)
Summary
For 3-4 years they had mental fatigue and possibly PEM without pain, orthostatic intolerance or physical fatigue, and were unsure whether it was ME/CFS. Sunosi, prescribed by doctors, greatly reduced the exhaustion. They worried it might mask worsening, and skipping it brought much greater fatigue; they considered testing a week off.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- Ritalin · Worse
I was prescribed Ritalin years before my exhaustion began, and it made me feel extremely wired.
In context ↗ - sunosi · Helped a lot
I was prescribed sunosi, which has been a massive help.
In context ↗
Approaches: Stimulants
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| about 3-4 years before July 2022 | mental fatigue beganI have been struggling with mental fatigue for 3-4 years now.In context ↗ |
| before 2022-07-27 | Sunosi made the exhaustion less severeI was prescribed sunosi, which has been a massive help.In context ↗ |
| 2022-07-29 | off Sunosi, fatigue was much greaterI definitely do feel the fatigue to a much greater degree.In context ↗ |
Adverse events
- Methylphenidate (Ritalin, Concerta)“I was prescribed Ritalin years before my exhaustion began, and it made me feel extremely wired.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I do suffer from mental fatigue
In context ↗ - Post-exertional malaise
potentially PEM
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID near recovery, then relapsed to homebound after infections
Alder 61841 got long COVID after a first COVID infection and kept working full time the first year. By year two they had improved, running and dancing again and feeling close to recovery. A second infection in August 2024 and a move while still sick pushed…
-
Long COVID crashes and wrecked gut, now near normal on antihistamines and diet
Badger 97535 developed long COVID after a covid infection in early 2021. He worked through months of 2-4 hours' sleep early on, a wrecked gut, mast cell reactions and flu-like crashes after exercise. Antihistamines, keto and very-low-calorie diets, PEA,…
-
Severe ME/CFS, unable to walk dog most days, much better on low-dose naltrexone
Former competitive cheerleader with ME/CFS, fibromyalgia and POTS who said they were severe without medication, unable to walk their dog 400 m most days and crashed for days after 10 minutes of exercise. Low-dose naltrexone at 6 mg brought them to mild,…
-
Long COVID, anhedonia and blank mind; rifaximin helped, then a fifth course worsened it
Long COVID followed a COVID infection in July 2022, with anhedonia, blank mind, emotional blunting and genital numbness, plus possible MCAS, POTS and SIBO. Rifaximin in 2023 helped, while methylene blue, NAD, plasmapheresis, SCIG and steroids gave only…