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Long COVID Moderate → no benefitIll for 15 months

Long COVID with daily fever and breathlessness, still ill 15 months on

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
15 months
Last post
Jan 2022
In their words
  • Condition: Long COVIDI’ve had a fever every day since October. I have to wash my bed sheets every 3 days because of sweat. In context ↗
  • At worst: ModerateI feel weak and beaten down each and every time I’ve got out of it. In context ↗
  • Now: No benefitI had a cough that lasted over a month and after a week of no coughing, I get it again due to peoples carelessness. In context ↗
  • Began after: COVIDFirst time: clients coughed on me and manager didn’t let me end the service. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A bar and facial-services worker, they first fell ill at work around October 2020 and were still ill about 15 months later, after early chest pain, breathlessness and an ER visit. A year on, an episode with all-negative tests left them unable to breathe and doubting they would survive. In January 2022 they still had a daily fever since October, sweating and a returning cough, and had been fired during workplace outbreaks.

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What they tried

Also tried

Antibiotics· No changeinhaler· No change
Their words about each treatment
  • Antibiotics · No changeAntibiotics were not working In context ↗
  • inhaler · No changeAntibiotics were not working, neither was an inhaler In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
first timecaught COVID at work from clients; chest pain and breathing problems, ER visitFirst time: clients coughed on me and manager didn’t let me end the service. In context ↗Mild
October (a year to the day of the first time)could not breathe, all tests negative, feared they would not surviveI tested negative in October, but I could not breathe. ... I really didn’t think I was going to survive. In context ↗Moderate
5 weeks laterworkplace outbreak, 22 coworkers positive; fired for not coming inMyself and a few others were terminated for not coming in. In context ↗Moderate
2022-01-16still weak, daily fever, sweats and a cough that keeps returningI feel weak and beaten down each and every time I’ve got out of it. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • BreathlessnessI tested negative in October, but I could not breathe. In context ↗
  • Heart symptoms & palpitationsI had horrible chest pain and delayed breathing. In context ↗
  • Flu-like symptomsI’ve had a fever every day since October. In context ↗
  • Temperature regulationI have to wash my bed sheets every 3 days because of sweat. In context ↗

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