ME/CFS lifelong, years lost, now somewhat better on Tru Niagen and low-dose naltrexone
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- whole life
- Last post
- May 2019
In their words
- Condition: ME/CFS
I’ve had cfs for my whole life
In context ↗ - Now: Somewhat better
This has made me functional.
In context ↗ - Began after: nothing they could name
I’ve had cfs for my whole life
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Wave 74343 wrote that they had had CFS their whole life, only confirmed in 2019 after reading about Stanford happenings, and that years had been lost to it. They took one Tru Niagen pill and low-dose naltrexone 1.5 mg, and said the supplements made them functional, calling them kind of amazing. No detail is given on how ill they had been, how quickly it worked or whether it lasted.
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What they tried
Their words about each treatment
- Tru Niagen · Helped a lot
I take (1) Tru Niagen pill (I forget the mg) ... This has made me functional.
In context ↗ - low dose naltrexone · Helped a lot
(1) low dose naltrexone (each one is 1.5 mg). This has made me functional.
In context ↗
Approaches: Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| childhood / whole life | CFS for their whole life, unconfirmed until 2019I’ve had cfs for my whole life - didn’t confirm until I read the Stanford happenings going on now.In context ↗ | Not stated | |
| 2019-05-15 | became functional on Tru Niagen and low-dose naltrexoneThis has made me functional. So it is kind of amazing these supplements.In context ↗ | Mild | Low-dose naltrexone |
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