Bedbound with long COVID for six months, now much better with Pepcid and alpha lipoic acid
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Aug 2024
In their words
- Condition: Long COVID
I got Covid in 2021 delta and I got post viral dysautonomia mainly pots like symptoms
In context ↗ - At worst: Severe
was bed bound the first 6 months
In context ↗ - Now: Much better
I would say 80% better and can function again!
In context ↗ - Began after: COVID
I got Covid in 2021 delta and I got post viral dysautonomia mainly pots like symptoms
In context ↗
Read from 26 of their posts and comments; links to the 12 this page draws on
Summary
When Crane 98909 caught COVID in September 2021, she developed POTS and was bedbound for the first six months; in the first two months she couldn't cross a room unaided. By six months she rated herself 85% normal and went back to hairdressing gradually. A dysautonomia doctor then put her on 80 mg Pepcid plus 600 mg alpha lipoic acid, which she credits with about 80% better; she still has POTS and flares but works.
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What they tried
What they credit
Their words about each treatment
- Celery juice · Helped
I’ve been drinking a lot of it every morning it really helps with energy and mental clarity!
In context ↗ - Zinc · Helped
Zinc, vitamin D, multi, lots of electrolytes and light exercise!
In context ↗ - light exercise and gradual return to work · Helped
lots of electrolytes and light exercise! ... I feel like working definitely helped me get back to myself!
- Pepcid · Helped a lot
Regimen 80mg of Pepcid a day 40 in morning then 40 in evening and 600mg of alpha lipoic acid!
In context ↗ - alpha lipoic acid · Helped a lot
my lc doc put me on Pepcid and ala game changer for me!
In context ↗
Approaches: H2 blockers · Physiotherapy and rehab · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| September 2021 | COVID delta; POTS-type dysautonomia started on day fourI got Covid in 2021 delta and I got post viral dysautonomia mainly pots like symptomsIn context ↗ | Not stated | |
| first six months | bedbound; could not get from the couch to the bathroomwas bed bound the first 6 monthsIn context ↗ | Severe | |
| early 2022 | went back to hairdressing gradually, one client a daywas off work for about 3 months then went back slowly and gradually 1 client a dayIn context ↗ | Moderate | |
| March 2022 | rated herself 85% normal at six monthsI’m 6 months in and would say I’m 85% normal!In context ↗ | Mild | |
| September 2022 | dysautonomia doctor started 80 mg Pepcid plus 600 mg alpha lipoic acidshe gave me like 80% of my life back just with Pepcid and alaIn context ↗ | Mild | Famotidine (Pepcid) |
| August 2024 | still has mild POTS but works and lives her lifeI still have pots but not bad I can function and live life againIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I still have pots but not bad I can function and live life again
In context ↗ - Brain fog
I don’t get brain fog too bad! I’ve had it some though throughout this journey!
In context ↗ - Anxiety & low mood
My anxiety is high now that the kids are back in school with no mask mandates
In context ↗
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