Long COVID
No benefitNeeds ongoing treatment
Still ill with long COVID and recurring myopericarditis; no benefit from colchicine
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Mar 2025
In their words
- Condition: Long COVID
My post-covid is distinctly more prominent within the autoimmune/inflammatory branch.
In context ↗ - Now: No benefit
I am too in a position where I find myself getting worse
In context ↗ - Began after: COVID
I recovered from Covid after 2 years
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
A COVID infection left them ill for two years, and a vaccination then set them back worse than before, with chronic recurring myopericarditis. Colchicine for over two years did not shift the heart inflammation. A ketogenic diet cut their brain fog and inflammation but was not good for their POTS, while a strict carnivore version reduced heart inflammation; cutting short-form social media and mindfulness also helped fatigue. Reinfections kept setting them back.
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What they tried
Also tried
ketogenic carnivore diet· Helped a lotketogenic carnivore diet· Helped a lottaking it easy· Helpedmindfulness mediation· Helpeddeleted all short video format social media sites· Helpedcolchcine· No changeCOVID vaccination as treatment· Worseprednisone· Not saidLDN· Not saidnicotine patches· Not said
Their words about each treatment
- taking it easy · Helped
if I haven’t of taken it easy this past few years I would be in a lot worse state
In context ↗ - colchcine · No change
I’ve been taking colchcine for heart inflammation for over 2 years now. The inflammation is won’t budge
In context ↗ - prednisone · Not said
better than the colchicine and prednisone I’ve had
In context ↗ - ketogenic carnivore diet · Helped a lot
I’m on a very strict ketogenic carnivore diet is the best diet for my symptoms
In context ↗ - LDN · Not said
I thought it was LDN and nicotine working together
In context ↗ - nicotine patches · Not said
Been trying low-dose nicotine now for about a week.
In context ↗ - mindfulness mediation · Helped
Coupled this with mindfulness mediation and I just feel lot better mentally as well.
In context ↗ - deleted all short video format social media sites · Helped
I found my fatigue/brain fog to improve a lot after I deleted all short video format social media sites.
In context ↗ - COVID vaccination as treatment · Worse
This was exacerbated hugely by the V ... the V set me back and worse than ever before
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| onset | COVID infection, ill for two yearsI recovered from Covid after 2 yearsIn context ↗ | |
| — | vaccination set them back worse than everthe V set me back and worse than ever beforeIn context ↗ | |
| — | each new COVID infection set them back to square oneNow every Covid infection sets me back to square one and reignites my Myopericarditis.In context ↗ | |
| March 2025 | strict ketogenic carnivore diet cut brain fog and heart inflammation, worsened POTSreduces inflammation around my heart better than the colchicine and prednisone I’ve hadIn context ↗ | |
| March 2025 | quit short-form social media and added mindfulness meditationI found my fatigue/brain fog to improve a lot after I deleted all short video format social media sitesIn context ↗ | Meditation, yoga, breathwork |
| 2025-03 | heart inflammation still would not shiftThe inflammation is won’t budgeIn context ↗ |
Adverse events
- COVID vaccination as treatment“I currently suffer with chronic recurring myopericarditis as a result of the V which caused an autoimmune issue.” In context ↗ Autoimmune or inflammatory flare
- COVID vaccination as treatment“This was exacerbated hugely by the V ... the V set me back and worse than ever before” In context ↗ Made symptoms worse
- Keto and low-carb diets“It drastically reduces my brain fog and inflammation but it seems to not be good for my POTS.” In context ↗ Made symptoms worse
- Keto and low-carb diets“I have tried keto numerous times each time i got what you got” In context ↗ Made symptoms worse
- Nicotine patches“get a massive surge of euphoria in the first 1-3 hours ... turns out I was taking a large amount of nicotine in a short amount of time” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
I currently suffer with chronic recurring myopericarditis
In context ↗ - Brain fog
drastically reduces my brain fog and inflammation
In context ↗ - POTS & dysautonomia
it seems to not be good for my POTS
In context ↗