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Long COVID Moderate → somewhat betterIll 9 months before improving or writingNeeds ongoing treatment

Long COVID with severe vertigo and head fog, somewhat better after time

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
9 months
Last post
Mar 2023
In their words
  • Condition: Long COVIDI’m certain it has to be long-covid related because it came out of nowhere. In context ↗
  • At worst: Moderateeven once that part had mostly subsided I couldn’t walk anymore, my balance was completely off In context ↗
  • Now: Somewhat betterI’m only now beginning to feel semi-normal. Still not great all the time. In context ↗
  • Began after: COVIDcertain it has to be long-covid related because it came out of nowhere
Read from 7 of their posts and comments; links to the 6 this page draws on

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Summary

Canyon 70178 woke in October 2021 with severe vertigo and nystagmus, spent three days in a neurology unit unable to open their eyes for two days and then unable to walk, and was left with constant head fog that stopped them attending school. An MRI was normal and they never tested positive for COVID, but they believe it was long COVID. By nine months they were only beginning to feel semi-normal, still not great all the time, crediting only time; head fog persisted and vertigo was still there to a degree unless they did regular Epley manoeuvres.

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What they tried

What they credit

Also tried

edibles and tinctures· HelpedEpley Maneuvers· Helpedcoffee· Worse
Their words about each treatment
  • edibles and tinctures · HelpedI’m using tinctures now, mostly just in the evenings ... some days it does severely help my symptoms.
  • coffee · WorseEvery time I drink coffee I feel like this. I do get a bit of energy from it but it doesn’t overcome the brain fog In context ↗
  • Epley Maneuvers · HelpedI still experience vertigo if I don’t do regular Epley Maneuvers. Even then, it’s still there to a degree. In context ↗
  • Time · HelpedTime. That’s all that helped me. In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
October 2021woke with severe vertigo and nystagmus; three days in a neurology unitI woke up one day with severe vertigo and nystagmus In context ↗
2022-01-30vertigo and nystagmus settled but head fog persisted; stopped school for the termThe vertigo and nystagmus have gone, the worst of that only lasted a couple of weeks In context ↗Time and spontaneous remission
2022-07-21began to feel semi-normal, still not great all the timeonly now beginning to feel semi-normal. Still not great all the time. I have my moments. In context ↗Time and spontaneous remission

Symptoms mentioned

Their words about their symptoms

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