ME/CFS
Outcome unclear
ME/CFS limits laundry and dog walks, mobility scooter, ataxia; amitriptyline tried
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Apr 2023
In their words
- Condition: ME/CFS
It does sound a lot like ME/CFS to me
In context ↗ - At worst: Moderate
I struggle with the laundry, and dog walking as well. I use a mobility scooter now with a leash attachment. A lot of time my partner takes her because I just have to lay down.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Pebble 60805 posted in an ME/CFS forum describing difficulty with laundry and dog walking, using a mobility scooter, and often having to lie down while their partner walked the dog. They had a POTS test and were tried on amitriptyline by a neurologist for pain. Ibuprofen for migraines brought on by pushing did not help and gave them gastritis. They also described jerky hands, which a physiotherapist called ataxia.
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What they tried
Also tried
Their words about each treatment
- ibuprofen · Worse
it didn't work on the migraines and it gave me gastritis (stomach inflammation)
In context ↗ - Amitriptyline · Not said
my neuro tried me on it
In context ↗
Adverse events
- Ibuprofen (Advil, Nurofen, Motrin)“I use to use ibuprofen too for migraines I'd get when I pushed, but it didn't work on the migraines and it gave me gastritis (stomach inflammation).” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
migraines I'd get when I pushed
In context ↗ - POTS & dysautonomia
I had the same POTS test as you
In context ↗ - Headaches & migraine
I use to use ibuprofen too for migraines I'd get when I pushed
In context ↗ - Pain & fibromyalgia
There are some drugs they could try for the pain like Amitriptyline ... my neuro tried me on it
In context ↗ - Muscle weakness
I get the jerky shakes as well, my physio person told me it was called ataxia.
In context ↗