ME/CFS since childhood, still rough but somewhat better with diet and supplements
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2022
In their words
- Condition: ME/CFS
my chronic fatigue is rough
In context ↗ - At worst: Severe
wake up exhausted and barely be able to move with out pain
In context ↗ - Now: Somewhat better
my health is much better but my chronic fatigue is rough
In context ↗
Summary
Sick as a child with asthma, pneumonia and a six-month mono, Sequoia 78505 got chronic fatigue again in their 30s after double lung failure at 18. An allergist linked recurring illness to food intolerances. They credit supplements, an anti-inflammatory diet, walking, IV vitamin C and glutathione, acupuncture and massage for much better health, though at 42 chronic fatigue is still rough and out-of-pocket costs keep interrupting it.
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What they tried
What they credit
Also tried
Their words about each treatment
- prednisone · Not said
I’ve been on an off it most of my life for asthma later issues
In context ↗ - Organicolivia adrenal and liver support · Helped
Makes a great adrenal support, and liver support they help me a lot
In context ↗ - Vitamin IV therapy · Helped
I’ve found Vitamin IV therapy, sticking to a regime of vitamins & supplements truly helpful
In context ↗ - glutathione · Helped
glutathione is supposed to help on a cellular level so I take that too
In context ↗ - vitamins & supplements regime · Helped
I feel my best when I’m ... On top of my supplements
In context ↗ - acupuncture · Helped
I feel I’ve personally found the most relief and understanding from alternative sources, like acupuncture, herbalism
In context ↗ - massage · Helped
Massage and acupuncture help too
In context ↗ - yoga · Helped
treat holistically with vitamin and supplements regimes, massage and yoga
In context ↗ - anti inflammatory diet · Helped
eat really well ( it’s crucial to be on an anti inflammatory diet)
In context ↗ - walking regularly · Helped
when I walk regularly ( walking is one the most beneficial things we can do to regulate our symptoms)
In context ↗
Approaches: Alternative therapies · Diet · Exercise and activity · Mind-body practices · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| in my 30’s | got sick again with chronic fatigue after a good period of healthI had a good period of health but then later got sick again in my 30’sIn context ↗ | Not stated |
| before finding an allergist | waking exhausted and barely able to move without painI truly understand what it feels like to wake up exhausted and barely be able to move with out painIn context ↗ | Severe |
| 2022-09-02 | allergist identified food intolerances; supplements, anti-inflammatory diet and walkingI’m 42 now and my health is much better but my chronic fatigue is roughIn context ↗ | Mild |
| 2022-09-04 | feels ok while able to afford their treatments, then falls off when money runs outI feel ok for awhile and then can’t afford to keep upIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
wake up exhausted
In context ↗ - Pain & fibromyalgia
barely be able to move with out pain
In context ↗
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