CFS with brain fog and word tearing, somewhat better with ketamine and yoga
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Dec 2022
In their words
- Condition: ME/CFS
I work as a suicide prevention specialist, have CFS
In context ↗ - At worst: Mild
get in small amounts of “exercise” (which is walking down to the end of my driveway)
In context ↗ - Now: Somewhat better
A lot of my word tearing and brain fog dissipated to the point I have very little (compared to my crashes-still isn’t back to normal).
In context ↗
Read from 9 of their posts and comments; links to the 6 this page draws on
Summary
Canyon 74829 has CFS and works as a suicide prevention specialist. A stellate ganglion block, done for PTSD, gave a noticeable reduction in symptoms; after alcohol at a reunion the next weekend they crashed for three weeks. Ketamine therapy, yoga and meditation helped, and testosterone replacement improved energy to a degree; two weeks after ketamine a lot of word tearing and brain fog had gone, though they were still not back to normal.
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What they tried
What they credit
Also tried
Their words about each treatment
- yoga and meditation · Helped
Yoga and meditation also help.
In context ↗ - super clean diet · Helped
And even this isn’t a magical cure. I still get knocked on my ass. But having these habits means my downtime is far less.
In context ↗ - Stellate ganglion block · Helped
Had mine done via ultrasound guidance. Super quick easy and very effective.
In context ↗ - ketamine therapy · Helped
A lot of my word tearing and brain fog dissipated to the point I have very little (compared to my crashes-still isn’t back to normal).
In context ↗ - TRT · Helped
I’m on TRT and it has helped my energy levels to a degree.
In context ↗
Approaches: Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | living with CFS, working as a suicide prevention specialistI work as a suicide prevention specialist, have CFS, and am the sole bread winner for my family.In context ↗ | Mild | |
| 2022-10-29 | positive impact from a stellate ganglion blockStellate ganglion block had a positive impact and am undergoing ketamine therapy next week.In context ↗ | Mild | Stellate ganglion block |
| 2022-12-13 | crashed after drinking at a college reunionruined the procedure by having alcohol at a college reunion the following weekend. Stupid move on my part. Crashed for 3 weeks.In context ↗ | Moderate | |
| 2022-12-14 | brain fog and word-finding much reduced two weeks after ketamineA lot of my word tearing and brain fog dissipated to the point I have very little (compared to my crashes-still isn’t back to normal).In context ↗ | Mild | Ketamine |
Symptoms mentioned
Their words about their symptoms
- Brain fog
A lot of my word tearing and brain fog dissipated
In context ↗ - Post-exertional malaise
I still get knocked on my ass. But having these habits means my downtime is far less.
In context ↗ - Anxiety & low mood
I’ve been down this same deep dark hole that you’re going through.
In context ↗
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