Miruvor
Sign up
Long COVID Outcome unclearIll for 5 months

Long COVID hair loss and distorted smell; gabapentin helped trigeminal neuralgia

Condition
Long COVID
At worst
Not stated
Ill for
5 months
Last post
Jan 2022
In their words
Read from 2 of their posts and comments; links to the 2 this page draws on

Request to remove this story

Summary

A Reddit user who fell ill with long COVID after a COVID-19 infection in September 2021. They reported hair loss bad enough to cut off waist-length hair, distorted smell of eggs, chicken and onions, and pain diagnosed as trigeminal neuralgia that only gabapentin helped. In a later post the smell of chicken was starting to fade while eggs still smelled wrong; they had earlier said over-the-counter painkillers did nothing.

Ask Miruvor AI

Asking aboutShore 27524’s story

What they tried

Also tried

gabapentin· Helpedover the counter pain medication· No change
Their words about each treatment
  • over the counter pain medication · No changeNothing over the counter touched the pain- still doesn't. In context ↗
  • gabapentin · HelpedI was prescribed gabapentin which is the only thing that helped. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
September 2021COVID-19 infection, followed by long-COVID symptomsCovid September '21. In context ↗
2022-01-02facial pain diagnosed as trigeminal neuralgia; gabapentin the only thing that helpedI was prescribed gabapentin which is the only thing that helped. In context ↗
2022-01-30hair loss and distorted smell persisting; smell of chicken starting to fadeI have recently noticed that chicken is losing the bad smell but eggs still have it. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Hair lossHair loss so bad I had to cut off waist length hair In context ↗
  • Loss of smell or tastea smell I can't describe with eggs, chicken, cooking oil and sometimes onions In context ↗
  • Headaches & migraineI had this..I ended up being diagnosed with Trigeminal Neuralgia. In context ↗
  • Neuropathy & tinglingNothing over the counter touched the pain- still doesn't. In context ↗

Ask Miruvor AI

Asking aboutShore 27524’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime