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Long COVID Moderate → somewhat betterIll 3 years before improving or writing

Long COVID, sedentary with lethargy and insomnia, somewhat better after nootropic protocol

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
3 years
Last post
Aug 2023
In their words
  • Condition: Long COVIDI got hit twice but neither version “tested” positive. In context ↗
  • At worst: ModerateI couldn’t even muster the energy to take the dog for a walk ... I felt like I was working with an outdated cell phone battery, nothing recharged me. In context ↗
  • Now: Somewhat betterstarted a nootropic protocol that has helped me actually feel alive for the first time in 3 years ... Still can’t exercise without needing 4 days to recuperate if I went a little too hard but it’s a start. In context ↗
  • Began after: COVIDI got hit twice but neither version “tested” positive. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

After two illnesses that didn't test positive they went from very active to sedentary, with severe lethargy, depression, pain, hot flushes and insomnia; the worst lasted about 18 months and bloodwork was normal. Three years in, a naturopathic nutritionist's testing led to a nootropic protocol, after which they woke feeling rested and alive again. They still needed four days to recover from over-exertion and awaited cardiology for chest pain.

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What they tried

Also tried

nootropic protocol· Helpedablation· Not said
Their words about each treatment
  • ablation · Not saidthe OB gave me an ablation for my heavy bleeding and emergency room level blood clots. In context ↗
  • nootropic protocol · Helpedstarted a nootropic protocol that has helped me actually feel alive for the first time in 3 years. It’s take. A couple of months but I’m waking up actually feeling rested. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetLong COVID after two COVID-like illnesses; sedentary and depressed, too drained to walk the dogI went from incredibly active to depressive and sedentary. In context ↗Moderate
2023Nootropic protocol from a naturopathic nutritionist; waking rested and feeling alivestarted a nootropic protocol that has helped me actually feel alive for the first time in 3 years In context ↗Mild
2023-08-02Still needs about four days to recuperate after over-exertion; waiting for cardiologyStill can’t exercise without needing 4 days to recuperate if I went a little too hard but it’s a start. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseStill can’t exercise without needing 4 days to recuperate if I went a little too hard In context ↗
  • Anxiety & low moodsevere depression In context ↗
  • Heart symptoms & palpitationsI’m still waiting see the cardiologist for my intermittent chest pain In context ↗

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