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ME/CFS Severe → somewhat better

Bedridden with ME/CFS, now somewhat better after acupuncture and hydrogen peroxide

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Dec 2016
In their words
  • Condition: ME/CFSone of the most effective treatments that I have used in improving the conditions of my CFS In context ↗
  • At worst: SevereI just went from functioning normally to completely bedridden and struggling to get through the day In context ↗
  • Now: Somewhat betterfor now, black seed oil, apple cider vinegar, and a very clean diet mitigates most of the symptoms In context ↗
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

Canyon 17285 went from functioning normally to completely bedridden overnight, with vertigo, headaches, pain, night terrors and night sweats. An acupuncturist's treatment gave a partial improvement that plateaued. A hydrogen peroxide protocol they read about helped dramatically and overnight, though it did not cure them. Later they said black seed oil, apple cider vinegar and a clean diet mitigated most symptoms and they were looking for work.

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What they tried

Their words about each treatment
  • hydrogen peroxide · Helped a lotThis didn't cure me but it greatly helped In context ↗
  • acupuncture · HelpedAfter a few months of treatment, there was improvement, but not as much as I had hoped. In context ↗
  • black seed oil · Helpedfor now, black seed oil, apple cider vinegar, and a very clean diet mitigates most of the symptoms In context ↗

Approaches: Alternative therapies · Diet · Other drugs and medicines · Supplements

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—sudden onset, bedridden overnighthow I just went from functioning normally to completely bedridden and struggling to get through the day In context ↗Severe
after a few months of treatmentpartial improvement from acupuncture, then plateauAfter a few months of treatment, there was improvement, but not as much as I had hoped. In context ↗Not stated
December 2016hydrogen peroxide protocol; symptoms strongly decreased, life manageablestrongly decreased many of the symptoms and its made life very managable In context ↗Mild
2016-12-26black seed oil, apple cider vinegar and clean diet mitigate most symptoms; looking for workblack seed oil, apple cider vinegar, and a very clean diet mitigates most of the symptoms In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaextreme vertigo and headaches In context ↗
  • Pain & fibromyalgiaLots of pain, night terrors, and sweating throughout the night etc. In context ↗
  • Sleep problemsI feel like I haven't slept in 3 days,and I am constantly congested and weak. In context ↗
  • Temperature regulationsweating throughout the night In context ↗
  • Gut problemsPukey, extreme fatigue, congestion, extreme vertigo and headaches In context ↗
  • Flu-like symptomsI am constantly congested and weak In context ↗
  • Muscle weaknessI looked miserable. weak. sick. ill tired. In context ↗
  • Anxiety & low moodmy only next choice was to kill myself(I can't stand living like this) In context ↗

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