Overwhelming fatigue and 5-to-10-day crashes, now nearly back to normal after Nurosym
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 11.5 years
- Last post
- May 2025
In their words
- Condition: ME/CFS
I didn't notice any change in my CFS until 1 month of daily usage for 1+ hour a day.
In context ↗ - At worst: Mild
I learned pretty early on how to pace myself, supplements/meds that helped a little, and how to rearrange my life to where it was somewhat livable.
In context ↗ - Now: Near normal
My energy level is almost back to normal. Less anxiety and depression. Improved Metabolism. Less inflammation. Improved memory and sleep.
In context ↗ - Began after: another virus
I got a really strange virus that apparently had been going around in the Detroit area
Read from 21 of their posts and comments; links to the 10 this page draws on
Summary
After a strange virus in 2012 left them with overwhelming fatigue and 5-to-10-day crashes, they paced a somewhat livable life for over a decade. In January 2024 they got the $800 Nurosym vagus nerve stimulator; anxiety fell within an hour and, after a month of daily use, fatigue eased and a three-hour game no longer caused a crash. They were able to work, play pickleball daily and do workouts, energy almost back to normal; a year on they felt calmer and slept better.
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What they tried
What they credit
Also tried
Their words about each treatment
- pacing · Helped
I learned pretty early on how to pace myself, supplements/meds that helped a little, and how to rearrange my life to where it was somewhat livable.
In context ↗ - supplements/meds · Helped
supplements/meds that helped a little
In context ↗ - Nurosym · Helped a lot
I have all my energy back, I'm sleeping better, I've lost wait, and I feel way calmer!
In context ↗
Approaches: Pacing · Vagus nerve stimulation
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2012 | strange virus, then lasting fatigue on exertionI got a really strange virus ... I was left with overwhelming fatigue, especially when I worked out or did anything strenuousIn context ↗ | Mild | |
| early February 2024 | 5-day crash after 3 hours of pickleballwhen I played Pickleball for about 3 hours, my crash lasted 5 days straightIn context ↗ | Mild | |
| 2024-02-13 | less fatigue, pickleball without a crashthe fatigue is lessening ... I was able to play Pickleball for almost 3 hours this past Saturday without consequence! | Mild | Vagus nerve stimulation |
| 2024-04-09 | work, lawn mowing, 3 hours pickleball and a workout in one dayYesterday, I went to work, mowed my lawn, played Pickleball for 3 hours and then did a workout.In context ↗ | Near normal | Vagus nerve stimulation |
| 2024-09-09 | energy almost back to normalMy energy level is almost back to normal.In context ↗ | Near normal | Vagus nerve stimulation |
| 2025-05-21 | calmer and sleeping better after over a year of daily useAfter using it for over a year, I feel extremely calm. And I'm sleeping better.In context ↗ | Near normal |
Adverse events
- Vagus nerve stimulation“I had some lightheadedness and dizziness when I forst started using it but it went away after a few weeks.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
my crashes would typically last anywhere from 5 to 10 days
In context ↗ - Anxiety & low mood
Aside from helping me tremendously with anxiety, depression, and shame
In context ↗ - Sleep problems
I'm also sleeping way better
In context ↗ - Brain fog
It helped with brain fog.
In context ↗ - Heart symptoms & palpitations
my heart rate was slower and my heart beating way lighter
In context ↗ - Headaches & migraine
I also got horrible headaches and occasional vomiting.
In context ↗ - Gut problems
Anything else would leave me writhing in pain from stomach cramps for 8 to 12 hours.
In context ↗
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