ME/CFS
Outcome unclear
Exhausted 24/7 all their life with suspected ME/CFS, saving for a specialist
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- whole life (since childhood)
- Last post
- Oct 2024
In their words
- Condition: ME/CFS
So I suspect I have chronic fatigue syndrome because turns out being exhausted 24/7 for my whole life isn't normal.
In context ↗ - At worst: Mild
Now I work in an office and my commute is very long. As you can imagine, its hard to keep my eyes open.
In context ↗ - Began after: nothing they could name
I feel like chronic fatigue sums up my whole existence and has been going on long before COVID.
- Says they never had: Post-exertional malaise
I don't think I have PEM
Summary
A Reddit user aged 30 described being exhausted 24/7 for their whole life, with insomnia from 16 and never able to hold a normal job. They suspected chronic fatigue syndrome, had been diagnosed with tachycardia and were being investigated for an autoimmune condition, with POTS and MCAS self-suspected. They worked in an office despite falling asleep at their desk and were saving for a private specialist.
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What they tried
Also tried
Their words about each treatment
- caffeine · Not said
I'm drinking so much caffeine just to stay awake despite being told not to with my heart condition.
In context ↗ - weed · Not said
By 19 I was smoking weed daily to help me sleep, but the fatigue continued.
In context ↗ - physical activity · Helped
if anything a little physical activity is the only thing that stops me feeling like a zombie
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | lifelong exhaustion from childhoodbeing exhausted 24/7 for my whole life isn't normalIn context ↗ | Mild |
| 2024-10-29 | working in an office, exhausted, waiting on referralsI'm only 30 so people don't think I'm that sick or struggling that much but I really amIn context ↗ | Mild |
Symptoms mentioned
Anxiety & low moodBrain fogHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesPOTS & dysautonomiaSleep problemsVision problems
Their words about their symptoms
- Sleep problems
such terrible insomnia at night that I would fall asleep in every single day in class
In context ↗ - POTS & dysautonomia
I've fainted mysteriously on multiple occasions makes me think its POTS
In context ↗ - Heart symptoms & palpitations
diagnosed with tachycardia
In context ↗ - Headaches & migraine
always suffer with headaches which feel like pressure
In context ↗ - Vision problems
headaches which feel like pressure, and eye problems
In context ↗ - Mast cell (MCAS) & allergies
Long long history of inflammation, allergies
In context ↗ - Brain fog
I won't fall asleep or lose concentration
In context ↗ - Anxiety & low mood
I'm so tired I'm miserable all the time
In context ↗