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Long COVID Severe → somewhat betterIll 1 year before improving or writing

Long COVID unable to walk, now somewhat better with lingering flare-ups

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
1 year
Last post
Dec 2021
In their words
  • Condition: Long COVIDit took me close to a year to start being able to walk and not constantly feel like my heart was going to give out In context ↗
  • At worst: Severetook me close to a year to start being able to walk In context ↗
  • Now: Somewhat betterIt’s not as bad as it was, but the lethargy and body aches just hit me in waves sometimes. In context ↗
  • Began after: COVIDit took me close to a year to start being able to walk and not constantly feel like my heart was going to give out In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A person with long COVID could not walk and felt their heart was constantly about to give out. It took close to a year before they could walk again without that feeling. They have other chronic illnesses that the long COVID mimics, and they still get flare-ups; lethargy and body aches hit in waves. They say it is not as bad as it was.

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Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetcould not walk and felt their heart was constantly about to give outit took me close to a year to start being able to walk and not constantly feel like my heart was going to give out In context ↗Severe
2021-12-06able to walk again; lingering lethargy, body aches and flare-upsIt’s not as bad as it was, but the lethargy and body aches just hit me in waves sometimes. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsnot constantly feel like my heart was going to give out In context ↗
  • Pain & fibromyalgiathe lethargy and body aches just hit me in waves sometimes In context ↗

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