Mild-to-moderate ME/CFS, exhaustion and brain fog, now much better after liposomal NAD+
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 16 years
- Last post
- May 2025
In their words
- Condition: ME/CFS
Background: ME/CFS since 2009.
In context ↗ - At worst: Moderate
I'd consider myself as having moderate CFS. I was never bed bound. But after e.g. a family holiday, I'd be mostly out of action for a few months
In context ↗ - Now: Much better
it just greatly reduced my symptoms and I'm able to do a lot more now, but I'm still limited - still need to pace, brain fog still there if a little less so
In context ↗
Read from 16 of their posts and comments; links to the 5 this page draws on
Summary
Bluebell 41887 has had ME/CFS since 2009: a mild-to-moderate baseline with overwhelming exhaustion, PEM and brain fog, managing about two social engagements a week when pacing well. Six months before writing, Bluebell 41887 started liposomal NAD+ (250 mg) and reports PEM almost gone, much more activity and regular exercise, with improvement from day one. Brain fog, tiredness and the need for pacing and sleep aids remain; their life did not return to normal.
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What they tried
What they credit
Also tried
Their words about each treatment
- NAD+ liposomal capsules · Helped a lot
PEM / exhaustion almost completely gone!
In context ↗ - subcutaneous NAD+ injections · Helped
I tried subcutaneous injections too, but didn't notice much of a difference between that and the liposomal pills I'm taking
In context ↗ - NADH · Helped
had originally tried 50mg NADH before the NAD+, which had a definitely noticeable effect (although more mild than the higher dose NAD+)
In context ↗ - B-Complex multivitamin with niacin · Helped
I definitely felt good on those but it has it's limits and didn't come anywhere close to the 250mg NAD+ directly
In context ↗ - CoQ10 · Not said
I take it with 200mg CoQ10, and glutathione.
In context ↗ - medical cannabis · Helped
I'm a Medical Cannabis user and that has been the single other biggest thing to help me over these 15 years.
In context ↗ - pacing · Helped
with better pacing, I would usually manage about 2 social engagements per week
In context ↗
Approaches: Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2009 | ME/CFS began; moderate baseline with exhaustion, PEM and brain fogBackground: ME/CFS since 2009.In context ↗ | Moderate | |
| 2025-05-05 | PEM largely gone, able to exercise and do much more, still pacing with some brain fogPEM / exhaustion almost completely gone! ... Much more activity with much less pacing.In context ↗ | Mild | NAD+ boosters (NMN, nicotinamide riboside, NADH, ATP) |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Definitely still need sleep aids.
In context ↗
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