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ME/CFS Mild → no benefitIll for 1 year

ME/CFS barely able to get out of bed, no improvement from exercise or therapy

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
1 year
Last post
May 2024
In their words
  • Condition: ME/CFSI self-diagnosed myself with CFS a year ago In context ↗
  • At worst: MildI barely passed the first semester due to CFS, even after always 8-9 hours of sleep I can barely get out of bed In context ↗
  • Now: No benefitI have had CFS for a year, no medicine, no therapy works, it's getting worse everyday In context ↗
  • Began after: stress or burnoutbuilt up stress and depression over years without medication and therapy would lead to a life of hell
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A 19-year-old male student self-diagnosed CFS a year before his May 2024 post, after years of stress, bullying and depression. Nothing had helped: not breathing exercises, his daily routine and exercise, or the BetterHelp therapy programme he tried. Despite eight to nine hours of sleep he could barely get out of bed, focus on studying or hold a conversation, and he said things were getting worse every day.

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What they tried

Their words about each treatment
  • betterhelp program · No changeI tried the betterhelp program and i've met a lot of good doctors who talked to me and gave me advice, in the end nothing helped. In context ↗
  • exercise · Not saiddespite all my studying effort and good daily routine like exercise and breathing exercises In context ↗
  • breathing exercises · Not saidgood daily routine like exercise and breathing exercises In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2023self-diagnosed CFS after years of stress and depressionI self-diagnosed myself with CFS a year ago and it hasn't gotten better In context ↗Mild
2024-05-19still barely passing college and struggling to work; worseningit's gotten severely harder everyday In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Sleep problemseven after always 8-9 hours of sleep I can barely get out of bed In context ↗
  • Brain fogI can barely focus and remember my studying In context ↗
  • Anxiety & low moodI've fallen into depression again In context ↗

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