ME/CFS with leg pain and poor sleep, somewhat better with ketamine nasal spray
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Jul 2021
In their words
- Condition: ME/CFS
I have CFS and do psychedelics daily (ketamine) and others in my recreational time.
In context ↗ - Now: Somewhat better
I’m on ketamine for depression and it’s been helping with my pain and energy as a positive side effect ... I don’t shower every day since the heat and the standing are a lot most days
Read from 14 of their posts and comments; links to the 10 this page draws on
Summary
Island 91919 worked as a cook in a kitchen around 25 to 40+ hours a week, crashing after two or three days in a row, with stiff leg muscles, weak grinding knees, pain and interrupted sleep. Ketamine nasal spray, started for treatment-resistant depression, eased pain and sleep so they felt less fatigued, and they took Wellbutrin XL for depression. They kept working, paced chores with rests and took several baths a day to cope with heat and standing.
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What they tried
What they credit
Also tried
Their words about each treatment
- physical therapy exercises (calf lifts, quad and calf stretches, resistance band lateral walking) · Helped
It was all pretty low strain and has helped me keep my very stiff leg muscles well built and able to still go to work.
In context ↗ - Body Armor electrolyte drinks · Not said
I personally enjoy body armors the most for electrolyte drinks.
In context ↗ - resting before and between tasks (pacing) · Helped
It makes things able to be accomplished and I don’t usually get discouraged or tired if I do things this way.
In context ↗ - Wellbutrin XL · Helped
I had to get prescribed Ketamine with it for it to actually start working properly, but my pain and energy has been a lot better even on the days I don’t take the Ketamine.
In context ↗ - ketamine · Helped
I’m on ketamine for depression and it’s been helping with my pain and energy as a positive side effect.
In context ↗ - cannabis · Not said
I smoke a lot of weed
In context ↗ - hot baths · Helped
I do take multiple baths a day since it helps my joints and fatigue
In context ↗
Approaches: Other antidepressants · Other drugs and medicines · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | CFS onset, trigger not described | Mild | |
| 2020-10-04 | Cooking shifts of about 25 hours a week, crashing after two or three days in a rowI usually always crash by the time I’m working for 2-3 days in a rowIn context ↗ | Mild | |
| 2021-02-15 | Ketamine eased pain and sleep, so less fatiguedIt has actually been helping me with my pain and sleep so I am fatigued lessIn context ↗ | Mild | Ketamine |
| 2021-07-23 | Still doing physical work; heat and standing are a lot, takes several baths a dayI don’t shower every day since the heat and the standing are a lot most days, but I do take multiple baths a day since it helps my joints and fatigueIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I usually always crash by the time I’m working for 2-3 days in a row
In context ↗ - Sleep problems
getting more uninterrupted sleep
In context ↗ - Pain & fibromyalgia
it’s been helping me with my muscle aches and pains
In context ↗ - Muscle weakness
my condition gives me very weak and grinding knees
In context ↗ - Anxiety & low mood
I’m on ketamine for depression
In context ↗ - Temperature regulation
the heat and the standing are a lot most days
In context ↗
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