Bedbound for months with long COVID, now somewhat better and back at part-time work
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 13 months
- Last post
- Aug 2026
In their words
- Condition: Long COVID
the assumption is now long covid
In context ↗ - At worst: Severe
Two-3 months bedbound
In context ↗ - Now: Somewhat better
Last couple shots I think just kept me at baseline, not a dramatic increase but not as bad as I used to be
In context ↗
Read from 69 of their posts and comments; links to the 31 this page draws on
Summary
Chronic fatigue began in January 2025; they were bedbound two to three months and later assumed to have long COVID after tests were normal. Low-dose naltrexone and modafinil each helped briefly then faded. A third stellate ganglion block in early 2026 lifted them from about 30% to 60-70%, but later blocks only kept them at baseline. They started nicotine patches alongside a fifth block, and by March 2026 were back at part-time remote work, better but still limited.
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What they tried
What they credit
Also tried
Their words about each treatment
- LDN · Helped
I noticed positive effects in energy after first 12 days are so. Now I’m about 60-70% better.
In context ↗ - saunas · Helped
I started saunas at the same time as Ldn so hard to know which is helping but I think it is.
In context ↗ - ketamine · No change
I’ve also tried ketamine but still have the same issues you mentioned
In context ↗ - antihistamines · Not said
Yes I noticed weight gain almost immediately with nothing else changing
In context ↗ - creatine · No change
I tried and it didn’t work but maybe I didn’t use the right kind of
In context ↗ - NAC · No change
Didn’t help me.
In context ↗ - Accupuncture · Worse
Accupuncture hurt when I was fatigued so then I stopped
In context ↗ - Oxocloate · No change
Oxocloate did nothing for me but they honored the money back guarantee so I’m happy about that
In context ↗ - propranolol · Not said
propranolol (just started but I honestly don’t know how it’ll help but gonna try)
In context ↗ - Modafinil · Helped
Modafinil worked for three days for me then stopped. Now it just makes my heart race and super anxious so I’m switching to ritilian
In context ↗ - B12 injections · No change
I’ve tried it once and didn’t see anything but trying again next week
In context ↗ - electrolytes · No change
They don’t help me
In context ↗ - adderall · Helped
Same thing happened to me w adderall and modafinil
In context ↗ - gabapentin · Helped a lot
It’s been such a game changer for me. I take 900 mg and then like two hours later I’ll be like why do I have energy now.
In context ↗ - Stellate ganglion block · Helped a lot
Third shot (one week ago) brought me back to a person I haven’t been in a year.
In context ↗ - meditating · Helped
Started meditating as a part of a long COVID study
In context ↗ - anti depressant (SSRI) · Helped
Changed my anti depressant from SSNI to SSRI
In context ↗ - stopped exercise · Helped
Stopped any form of exercise besides occasionally walking or light lifting
In context ↗ - radically rest · Worse
Yeah in November I tried to “radically rest” and it actually decreased my baseline noticeably.
In context ↗ - ritilian · Not said
so I’m switching to ritilian
In context ↗ - NAD+ · No change
By pull didn’t do anything for me but nah e I did the wrong brand
In context ↗ - Guanfacine · No change
I tried and it didn’t help me
In context ↗ - physical therapy · Not said
Mt. Sinai Center for Post-COVID Care recommended me for physical therapy to increase my ability to exercise.
In context ↗ - nicotine patches · Helped a lot
I’ve started nicotine patches and I feel awesome. I feel good and I’ve forgotten what it was like to feel bad.
In context ↗ - zyn · Not said
I have a zyn in my mouth all waking hours
In context ↗
Approaches: Alternative therapies · Mind-body practices · Other drugs and medicines · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2025 | chronic fatigue began; bedbound for two to three monthsI’ve had chronic fatigue since January. Two-3 months bedbound but now more mild.In context ↗ | Severe | |
| August 2025 | about 60-70% better, able to shop and do laundry, still on medical leaveNow I’m about 60-70% better. ... I can go to grocery and do laundry now and leave the bed.In context ↗ | Moderate | Low-dose naltrexone |
| December 2025 | crash after ten good days, back in bed feeling sickI’m reading this after a good ten days and then now been in bed feeling sick.In context ↗ | Moderate | |
| February 2026 | third stellate ganglion block, from about 30% to 60-70%brought me back to a person I haven’t been in a year ... I’d say I’m 60-70% now. But way better than 30.In context ↗ | Mild | Stellate ganglion block |
| March 2026 | returned to part-time remote work and the good stretch endedmy mistake was going back to work after I had a good 1-2 weeks ... But my good feeling was short livedIn context ↗ | Mild | |
| April 2026 | started nicotine patches alongside a fifth block and felt goodI’ve started nicotine patches and I feel awesome. I feel good and I’ve forgotten what it was like to feel bad.In context ↗ | Mild | Nicotine patches |
| August 2026 | later blocks held them at baseline, better than at their worstLast couple shots I think just kept me at baseline, not a dramatic increase but not as bad as I used to beIn context ↗ | Mild | Stellate ganglion block |
Adverse events
- Low-dose naltrexone“Yeah I was handling side effects well.” In context ↗ Side effects
- H1 antihistamines (unspecified)“Yes I noticed weight gain almost immediately with nothing else changing” In context ↗ Side effects
- Modafinil / armodafinil“Now it just makes my heart race and super anxious so I’m switching to ritilian” In context ↗ Heart rhythm problems
- Modafinil / armodafinil“It makes me very anxious tho and I don’t think really helps me wake up.” In context ↗ Mood or psychiatric effects
- Amphetamine salts (Adderall)“But if adderall didn’t have so many negative impacts for me, I’d do that more.” In context ↗ Side effects
- Acupuncture“Accupuncture hurt when I was fatigued so then I stopped” In context ↗ Other
- Radical rest“Yeah in November I tried to “radically rest” and it actually decreased my baseline noticeably.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
There were times I exercised this last year and didn’t get pem. Then i started to get pem.
In context ↗ - Sleep problems
I’m also sleeping twelve hours a day and on a med leave from work
In context ↗ - Brain fog
She was concious of my brain fog when giving me information
In context ↗ - Anxiety & low mood
Oh I always have anxiety so haven’t noticed it go up or down. I use gabapentin for anxiety
In context ↗
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