ME/CFS
Outcome unclear
Moderate to mild ME/CFS after COVID with EBV reactivation, no overall change
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
I got infected with Covid which messed up my immune system so much that EBV reactivated and boom there was the ME
In context ↗ - At worst: Moderate
I'm moderate to mild and think I've had a similar experience as you
In context ↗ - Began after: COVID
During my worst episode of overachieving I got infected with Covid which messed up my immune system so much that EBV reactivated and boom there was the ME.
In context ↗
Summary
They rated themselves 'moderate to mild' and dated their ME/CFS to a COVID infection that reactivated EBV during a period of overachieving. They found it great for whole-body pain but it did nothing for other symptoms. They worked through longstanding trauma with a psychotherapist who understands ME, warning that others may gaslight. No overall change in their illness was described.
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What they tried
Also tried
Their words about each treatment
- ibuprofen · Helped
For me personally it's great for the whole body pain but does nothing for other symptoms
In context ↗ - psychotherapist · Helped
I've worked through this problem with an amazing psychotherapist who knows about ME
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| onset | COVID infection reactivated EBV and ME/CFS beganDuring my worst episode of overachieving I got infected with Covid which messed up my immune system so much that EBV reactivated and boom there was the ME.In context ↗ | Not stated |
| 2026-09-28 | rates self moderate to mildI'm moderate to mild and think I've had a similar experience as you.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
it's great for the whole body pain
In context ↗ - Post-exertional malaise
having the pain, fever, neurological symptoms the day after overexerting yourself
In context ↗ - Anxiety & low mood
I've always tied my worth to how much I was capable of achieving
In context ↗