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Condition not stated Outcome unclearIll for 3 years

Severe insomnia and brain fog, now POTS and sleeping pills; fasting and sleep device tried

Condition
Condition not stated
At worst
Not stated
Ill for
3 years
Last post
Jan 2025
In their words
  • Condition: Condition not statedive had this for 3 years now after having covid In context ↗
  • Began after: COVIDive had this for 3 years now after having covid and it started the night the covid illness stopped.. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A Reddit user's long COVID began about three years before these posts, when severe insomnia started the night the COVID illness ended: initially ten-plus wake-ups a night, vivid dreams, and intense brain fog, low mood and fatigue without sleep. Three years later they still needed sleeping pills, have POTS and brainstem hypoperfusion, and had pre-COVID chronic fatigue. A 20-hour fast was abandoned for severe brain fog and headache, and a sleep device helped two weeks before causing brain zaps.

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What they tried

Also tried

Modius sleep device· Helped · wore offfasting· Worsesleeping pills· Not said
Their words about each treatment
  • sleeping pills · Not saidive been juggling sleeping pills ever since.. cos if i dont have any 'normal' sleep.. my fatigue and brainfog/mood is intesnly bad. In context ↗
  • fasting · WorseI tried to fast.. and even after 20 hours my brainfog/headache was too severe to continue.. In context ↗
  • Modius sleep device · HelpedThe modius was working but then it made my brain zap after 2 weeks - not every solution is for everyone. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
2022COVID-19; insomnia began the night the illness endedive had this for 3 years now after having covid and it started the night the covid illness stopped.. In context ↗
first 6 months (2022)ten-plus nightly wake-ups and vivid dreamsthe first 6 months was beyond insane - 10+ wake ups and non stop ultravivid dreams.. In context ↗
January 2025still needing sleeping pills; brain fog, low mood, POTSive been juggling sleeping pills ever since.. cos if i dont have any 'normal' sleep.. my fatigue and brainfog/mood is intesnly bad. In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Sleep problemscovid ruined my sleep. its been going on for 3 years now after having covid In context ↗
  • Brain fogmy fatigue and brainfog/mood is intesnly bad In context ↗
  • POTS & dysautonomiaI have brainstem hypoprofusion, pots etc etc In context ↗
  • Anxiety & low moodSome days im close to ending it all In context ↗
  • Headaches & migraineeven after 20 hours my brainfog/headache was too severe to continue In context ↗

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