ME/CFS
Mild → no benefitIll for 5 years
Constant fatigue with ME/CFS for five years, unchanged; treatments gave no benefit
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 5 years
- Last post
- Jul 2023
In their words
- Condition: ME/CFS
Chronic fatigue for 5 years
In context ↗ - At worst: Mild
I feel tired right after waking up till the evening. Sometimes it's a bit worse, sometimes it's a bit better
In context ↗ - Now: No benefit
Fast forward to today - not much has changed - the fatigue is pretty much the same.
In context ↗ - Began after: nothing they could name
These symptoms appeared after a few months of reckless diet which was related to my gym trainings
Summary
A 26-year-old man described five years of constant fatigue beginning abruptly in August 2018, with tiredness from waking until evening, headaches after carbohydrate-heavy meals and a slightly warm body. Initial antibiotics and levothyroxine did not change it, and heartburn treatment resolved heartburn but not fatigue; fatigue lifted for a week after his tonsils were removed in 2019 and briefly with some antibiotics. It returned each time and was unchanged at his latest post.
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What they tried
Also tried
Their words about each treatment
- antibiotics · Helped a lot
sometimes, after taking regular antybiotics like amoxicillin, the symptoms disappeared all of sudden
In context ↗ - broncho vaxom · Not said
I got prescribed some medicines which were supposed to increase my immunity (it's called broncho vaxom in my country)
In context ↗ - tonsils removed · Helped
I noticed improvement after the tonsils removal surgery, which lasted for around a week
In context ↗ - PPI · Helped
I started taking PPI, the heartburn disappeared but the fatigue didn't.
In context ↗ - levothyroxine · No change
It didn't have much impact on my fatigue though.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 07.08.2018 | abrupt onset of constant fatigueIt started all of sudden on 07.08.2018In context ↗ | Mild | |
| late 2018 | symptoms disappeared during early antibiotic treatmentAfter a few months the symptoms disappeared just to reappear after the next 2-3 monthsIn context ↗ | Mild | Antibiotics (unspecified) |
| early 2019 | symptoms reappeared after 2-3 months | Mild | |
| August 2019 | fatigue lifted for about a week after tonsil removalI noticed improvement after the tonsils removal surgery, which lasted for around a weekIn context ↗ | Mild | Sinus, jaw and tonsil surgery |
| August 2019 | symptoms returned after resuming regular foodThen the symptoms returned after I started eating regular food again.In context ↗ | Mild | |
| 2023-07-02 | fatigue unchangednot much has changed - the fatigue is pretty much the sameIn context ↗ | Mild |
Symptoms mentioned
Anxiety & low moodFlu-like symptomsGut problemsHeadaches & migraineSleep problemsTemperature regulation
Their words about their symptoms
- Sleep problems
I also had had some problems with sleeping around a month before the symptoms showed up.
In context ↗ - Flu-like symptoms
I felt a bit different, as if I was coming down with a mild cold.
In context ↗ - Headaches & migraine
I have strong headaches after eating a meal containing a lot of carbohydrates.
In context ↗ - Temperature regulation
My body seems a little bit warm during the day.
In context ↗ - Gut problems
I had mild heartburn symptoms even before the fatigue started
In context ↗ - Anxiety & low mood
They were likely related to stress and mild depression.
In context ↗