Long COVID lightheadedness/dissociation, improved then relapsed; propranolol eased anxiety
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 14 months
- Last post
- Nov 2023
In their words
- Condition: Long COVID
I’m at month 14 we just gotta keep going
In context ↗ - At worst: Moderate
I went from weightlifting every single day to doing nothing at all, I can do some cardio since I have mostly all neuro symptoms but it doesn’t help at all.
In context ↗ - Now: Relapsed
I was getting better with time until I got sick back to back a month ago now I’ve been way worse all month and no sign of getting any better.
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Crest 95976 was at month 14 of long COVID in November 2023 and had stopped daily weightlifting; they had constant lightheadedness and dissociation. They had been improving with time until back-to-back illnesses in late November 2022 brought weekly flare-ups and a month of feeling much worse. Propranolol helped their anxiety and adrenaline dumps; trying fasting for about a day with water a couple times made them feel worse.
Ask Miruvor AI
What they tried
Their words about each treatment
- vitamin c · Not said
I’ve just been taking 1000mg vitamin c which I hope helps my immune system in some way
In context ↗ - propranolol · Helped
60mg of propranolol at night which really helps with the anxiety/adrenaline dumps I get
In context ↗ - cardio · No change
I can do some cardio since I have mostly all neuro symptoms but it doesn’t help at all
In context ↗ - fasting · Worse
I tried fasting a couple times for about a day but with water and to be honest it only made me feel worse
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| ~September 2022 | long COVID onsetYah I’ve had same thing for like 4-5 months, 24/7 lightheadednessIn context ↗ | Not stated |
| autumn 2022 | getting better with timeI was getting better with time until I got sick back to back a month agoIn context ↗ | Not stated |
| late November 2022 | crashed after back-to-back infections, then weekly flare-upsgot sick back to back late November and a week after I got better from all that I’ve been getting bad flare ups/relapses weeklyIn context ↗ | Not stated |
| January 2023 | much worse for a month after the infectionsnow I’ve been way worse all month and no sign of getting any betterIn context ↗ | Moderate |
| November 2023 | month 14, no longer weightlifting, only some cardioI went from weightlifting every single day to doing nothing at all, I can do some cardioIn context ↗ | Moderate |
Adverse events
- Intermittent fasting“I tried fasting a couple times for about a day but with water and to be honest it only made me feel worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
24/7 lightheadedness from the time I wake up to the time I sleep
In context ↗ - Brain fog
disassociation 24/7 too, feels like I’m not really here ever it’s super disorienting
In context ↗ - Anxiety & low mood
60mg of propranolol at night which really helps with the anxiety/adrenaline dumps I get
In context ↗