ME/CFS
Mild → no benefitIll for 6 years
Six years of poor focus and post-exertional crashes, still mild ME/CFS
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 6 years
- Last post
- Sep 2024
In their words
- Condition: ME/CFS
I don't have a diagnosis of CFS but I definitely have PEM
In context ↗ - At worst: Mild
I would still consider mine mild.
In context ↗ - Now: No benefit
They are occurring with more frequency, and the most recent incident had me in bed for one week (longest to date).
In context ↗ - Began after: nothing they could name
Looking back over my life, there have been signs along the way since my teens:
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A woman in her 50s described six years of inability to focus and post-exertional headaches and flu-like symptoms, preceded by fainting and orthostatic symptoms since her teens. After exercise she often had to stay in bed, and her most recent crash lasted a week, the longest so far. She still considered her illness mild and had no CFS diagnosis.
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What they tried
Also tried
Their words about each treatment
- toradol · Helped
I was once given an injection of toradol which was amazing ... it showed me that I was tolerating low energy as my baseline
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| last 6 years | high stress job, long hours, inability to focus, post-exertional headaches and flu-like symptomsthen in the last 6 years, working a high stress job with long hours, inability to focusIn context ↗ | Mild |
| most recent incident | after exercise, in bed for one week (longest to date)the most recent incident had me in bed for one week (longest to date)In context ↗ | Severe |
| 2024-09-22 | still gets post-exertional headaches and flu-like symptoms; considers illness mildthese days, 12-24hrs after exercise (and warm weather), I get massive headaches, feel like I’m getting sick, and have to stay in bed ... I would still consider mine mild.In context ↗ | Mild |
Symptoms mentioned
Brain fogFlu-like symptomsHeadaches & migrainePOTS & dysautonomiaPost-exertional malaiseTemperature regulation
Their words about their symptoms
- Post-exertional malaise
I definitely have PEM
In context ↗ - Brain fog
inability to focus
In context ↗ - POTS & dysautonomia
fainting due to dehydration when standing up quickly (low blood volume/orthostatic hypotension)
In context ↗ - Headaches & migraine
12-24hrs after exercise (and warm weather), I get massive headaches
In context ↗ - Flu-like symptoms
feel like I’m getting sick
In context ↗ - Temperature regulation
Raynaud’s symptoms after running, even when it wasn’t cold outside
In context ↗