ME/CFS
Mild → relapsedIll 38 years before improving or writing
Sick with ME/CFS for months, hard crash after jogging, improved then worse again
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 38 years
- Last post
- Dec 2025
In their words
- Condition: ME/CFS
Thought I could start jogging at slow pace and crashed hard.
In context ↗ - At worst: Mild
Functioned at sedentary job and college on low energy.
In context ↗ - Now: Relapsed
Much improvement by late 90s (was wonderful when I was able to exercise without flare up). ... Having to increase rest and decrease activity has been very depressing.
In context ↗ - Began after: glandular fever or EBV
Yep. Back in 1987. Doc said I was supposed to recover within 6 weeks but I kept feeling sick for months.
Summary
Fell ill in 1987; a doctor expected recovery within six weeks, but they kept feeling sick for months while working a sedentary job and attending college on low energy. In 1992 a jogging programme brought a hard crash. They improved much by the late 90s, able to exercise without flare-ups, but a 2019 surgery, pandemic isolation and ageing meant more rest and less activity, which they found depressing.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- exercise program · Much worse
Thought I could start jogging at slow pace and crashed hard.
In context ↗ - caffeine · Helped
When I quit completely it feels like my brain won't come online.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 1987 | Fell ill after glandular fever (mono); kept feeling sick for monthsFunctioned at sedentary job and college on low energy.In context ↗ | Mild | |
| 1992 | Crashed hard after starting a jogging exercise programmeThought I could start jogging at slow pace and crashed hard.In context ↗ | Not stated | Everyday exercise and activity |
| late 90s | Much improvement; could exercise without flare-upsMuch improvement by late 90s (was wonderful when I was able to exercise without flare up).In context ↗ | Mild | |
| 2019 | Worsened after surgery, pandemic isolation and ageingBut surgery in 2019 and remaining in pandemic isolation, and aging....In context ↗ | Mild | |
| 2023-11-04 | Still needing more rest and less activityHaving to increase rest and decrease activity has been very depressing.In context ↗ | Mild |
Adverse events
- “But surgery in 2019 and remaining in pandemic isolation, and aging.... Having to increase rest and decrease activity has been very depressing.” In context ↗ Made symptoms worse
- Everyday exercise and activity“Then in 1992 got super motivated for exercise program. Thought I could start jogging at slow pace and crashed hard.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Thought I could start jogging at slow pace and crashed hard.
In context ↗ - Anxiety & low mood
Having to increase rest and decrease activity has been very depressing.
In context ↗ - Brain fog
When I quit completely it feels like my brain won't come online.
In context ↗