ME/CFS
Severe → no benefit
ME/CFS with years of lightheadedness and fainting, wheelchair use; water and salt tried
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Feb 2020
In their words
- At worst: Severe
this and the pain from the tumor in my ankle combined to put me in a wheelchair
In context ↗ - Now: No benefit
eventually progressed from the usual symptoms of lightheadedness and a few seconds of dimmed vision like it had been for years, to wobbly knees and/or a hasty step or two to the side due to a lack of balance, and eventually to fainting
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Glade 79489 described years of orthostatic hypotension with lightheadedness and brief dimmed vision, which progressed to loss of balance and fainting. Drinking more water, taking electrolytes (mainly salt) and eating reduced these symptoms. Pain from a tumour in the ankle combined with the orthostatic symptoms to put them in a wheelchair.
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What they tried
Their words about each treatment
- more water, electrolytes (primarily salt), and food · Helped
I found that more water, electrolytes (primarily salt), and food reduced this, though.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | orthostatic hypotension with lightheadedness and brief dimmed vision for yearsthe usual symptoms of lightheadedness and a few seconds of dimmed vision like it had been for yearsIn context ↗ | Not stated | |
| — | progression to wobbly knees, loss of balance and faintingto wobbly knees and/or a hasty step or two to the side due to a lack of balance, and eventually to faintingIn context ↗ | Not stated | |
| — | in a wheelchair from orthostatic symptoms and ankle tumour painthis and the pain from the tumor in my ankle combined to put me in a wheelchairIn context ↗ | Severe | |
| 2020-02-16 | still in a wheelchair; water, electrolytes and food eased the orthostatic symptomsmore water, electrolytes (primarily salt), and food reduced thisIn context ↗ | Severe | Salt, electrolytes and fluids |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
orthostatic hypotension (temporary reduced blood pressure upon standing) eventually progressed from the usual symptoms of lightheadedness
In context ↗ - Vision problems
a few seconds of dimmed vision like it had been for years
In context ↗ - Pain & fibromyalgia
the pain from the tumor in my ankle
In context ↗