After a year of burnout and a crash, ME/CFS, now somewhat better lying flatter
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 10 years
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
I recently went to a doctor who diagnosed me with me/cfs and she tested the bloodflow to my brain with an ultrasound
In context ↗ - At worst: Severe
This means that i have to lie down most of the day.
In context ↗ - Now: Somewhat better
after a day of doing that i could think again. It really makes a huge difference.
In context ↗
Summary
About ten years ago, the antipsychotic dipiperon gave Pond 15501 a year of much more energy before it stopped working and brought bad anxiety. A year of burnout and a bad crash followed, and they never really recovered; in 2026 they were diagnosed with ME/CFS. A tilt test showed brain bloodflow fell 40% upright; lying flatter restored thinking, but they lie down most of the day.
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What they tried
What they credit
Also tried
Their words about each treatment
- dipiperon(antipsychotic) · Helped a lot
I used dipiperon(antipsychotic) and it gave me much more energy. It was awesome, but it only lasted a year and then it didn't work anymore and I got really bad anxiety.
In context ↗ - lying down flat with shoulders on the surface · Helped a lot
It really makes a huge difference. I thought i was getting dementia or something, but as long as i lie down frequently my brain works again.
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about 10 years ago | already ill with low energy, later tried dipiperonI experienced this too about 10 years ago.In context ↗ | Not stated |
| about 10 years ago | a year of much more energy on dipiperonthe second day I suddenly had energyIn context ↗ | Mild |
| after about a year on dipiperon | crashed badly after a year of burnout and never really recoveredAnd then i crashed badly and never really recovered.In context ↗ | Severe |
| 2026-07-03 | lying fully flat restored thinking; still lying down most of the dayafter a day of doing that i could think again. It really makes a huge difference.In context ↗ | Severe |
Adverse events
- “When i started the medicine , the first day I was really tired and slept all day” In context ↗ Side effects
- “it only lasted a year and then it didn't work anymore and I got really bad anxiety” In context ↗ Mood or psychiatric effects
- “And then i crashed badly and never really recovered.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
And then i crashed badly and never really recovered.
In context ↗ - Brain fog
I thought i was getting dementia or something, but as long as i lie down frequently my brain works again.
In context ↗ - Anxiety & low mood
then it didn't work anymore and I got really bad anxiety
In context ↗
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