Unable to function or care for essential needs, now somewhat better with stimulants
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2024
In their words
- Condition: ME/CFS
I cannot function, can't even take care of my essential needs, just trapped in my brain fog.
In context ↗ - At worst: Severe
I cannot function, can't even take care of my essential needs, just trapped in my brain fog.
In context ↗ - Now: Somewhat better
I can do basic things without feeling like my muscles are jello or I ran a marathon in my sleep.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
The Reddit user described being unable to function or care for their essential needs, trapped in brain fog with jello-like muscles, anxiety and exhaustion. Stimulants did not give energy but helped them get out of bed and do basic tasks, leaving them improved but still limited. Two shoulder surgeries without adequate painkillers left them weeping in bed and not sleeping most nights the week after. They also reported migraines.
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What they tried
What they credit
Also tried
Their words about each treatment
- stimulants · Helped
I also don't get energy from stimulants, it helps me feel less agitated and less depressed. It lets me get out of bed instead of just thinking about it for 3 hrs
In context ↗ - migraine cocktail · Worse
Even in the ER for migraines they act like you're just drug seeking even though the "migraine cocktail" doesnt include any opioids and makes me feel like my skin is on fire
In context ↗
Approaches: Stimulants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | could not function or care for essential needs; stayed in bed thinking about getting upI cannot function, can't even take care of my essential needsIn context ↗ | Severe | |
| 2024-10-12 | stimulants helped them get out of bed and do basic tasksI can do basic things without feeling like my muscles are jelloIn context ↗ | Moderate | Stimulants (unspecified) |
Adverse events
- Migraine cocktail (IV)“makes me feel like my skin is on fire” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
just trapped in my brain fog
In context ↗ - Muscle weakness
my muscles are jello
In context ↗ - Anxiety & low mood
it helps me feel less agitated and less depressed
In context ↗ - Headaches & migraine
Even in the ER for migraines
In context ↗ - Sleep problems
I didnt sleep most nights the week after the procedures
In context ↗
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