Long COVID with severe EBV flare left unable to speak, now much better with prednisone
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2024
In their words
- At worst: Severe
my body sort of shut down for lack of better words (couldn’t speak, had trouble walking, understanding people etc)
In context ↗ - Now: Much better
I occasionally have fatigue but it isn’t nearly as bad as before I went to the hospital.
In context ↗ - Began after: glandular fever or EBV
during this EBV flare up event
Summary
A severe EBV flare-up with untreated shingles left them unable to speak and with trouble walking; they eventually went to hospital and were also prescribed valacyclovir. Prednisone (80 mg) shocked their body back to normal for a few weeks and was probably the only medication they'd used that appreciably helped their fatigue or brain fog. By the time of writing they had only occasional fatigue, far better than before hospital.
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What they tried
What they credit
Also tried
Their words about each treatment
- Prednisone · Helped a lot
Prednisone was prescribed to me (80mg). Shocked my body back to normal and had tons of enery for a few weeks
In context ↗ - Valcyclovir · Not said
I was eventually prescribed Valcyclovir for Shingles
In context ↗
Approaches: Other drugs and medicines
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2024-03-03 | EBV flare-up with untreated shingles; body shut down, could not speak or walk properlymy body sort of shut down for lack of better words (couldn’t speak, had trouble walking, understanding people etc)In context ↗ | |
| 2024-03-03 | 80 mg prednisone brought them back to normal with lots of energyShocked my body back to normal and had tons of enery for a few weeksIn context ↗ | Corticosteroid pulses |
| 2024-03-03 | only occasional fatigue, far better than before hospitalI occasionally have fatigue but it isn’t nearly as bad as before I went to the hospital.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Brain fog
appreciable effect on fatigue or brain fog
In context ↗ - Muscle weakness
had trouble walking
In context ↗
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