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Long COVID Severe → recoveredIll 15 months before improving or writing

Long COVID with migraines, mostly in bed, now back to normal after a histamine supplement

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
15 months
Last post
Oct 2024
In their words
  • Condition: Long COVIDI’m six months into long covid. In context ↗
  • At worst: SevereI spent the next 1.5 months at the house mostly in bed. In context ↗
  • Now: RecoveredI took them, and within a week, i was 100 percent back to normal, and dont need zyrtec at all! In context ↗
  • Began after: COVIDSo my symptoms started with Covid like symptoms. In context ↗
Read from 9 of their posts and comments; links to the 6 this page draws on

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Summary

They described long COVID with sinus headaches, migraines, tingling and freezing episodes, and spent 1.5 months mostly in bed. Daily Zyrtec made them functional and able to work; two months off it brought symptoms back. Famotidine, B12, vitamin D, vitamin C and fish oil also helped, and in October 2024 a Heart and Soil histamine supplement left them 100% back to normal.

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Asking aboutRain 69232’s story

What they tried

Also tried

Heart and Soil Histamine and Immune supplements· Helped a lot
Their words about each treatment
  • Zyrtec · Helped a lotAfter zyrtec, an H1 blocker, all my long covid symptoms completely disappeared. In context ↗
  • pepcid(h2 blocker) · Helped a lotI also just started taking pepcid(h2 blocker) and am getting amazing results In context ↗
  • b12 · Helped a lotSupplementing with bit b12, d, and c has helping me tremendously. In context ↗
  • Heart and Soil Histamine and Immune supplements · Helped a lotI took them, and within a week, i was 100 percent back to normal, and dont need zyrtec at all! In context ↗
  • living in Florida · Helped a lotI lived in Florida for one year and never felt better. In context ↗

Approaches: H1 antihistamines · H2 blockers · Supplements

Their path

Very severeSevereModerateMildNear normalRecovered6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
mid-2023illness began with covid-like symptoms; tested negative for covidSo my symptoms started with Covid like symptoms. In context ↗Not stated
20231.5 months mostly in bed at home; two ambulance trips to the ER and an 8-day admissionI spent the next 1.5 months at the house mostly in bed. In context ↗Severe
late 2023back out of bed and at work, later workouts and runsThe only thing that changed my symptoms and let me get out of bed and go back to work was taking Zyrtec daily. In context ↗Near normalCetirizine (Zyrtec)
2024-01-11symptoms returned after two months off ZyrtecHowever, my symptoms returned today and I will be taking Zyrtec daily for the first time in 2 months. In context ↗Mild
2024-01-15restarted Zyrtec and added Pepcid, with B12, vitamin D, vitamin C and fish oilI also just started taking pepcid(h2 blocker) and am getting amazing results In context ↗MildFamotidine (Pepcid)
2024-10-09100 percent back to normal and off Zyrtec after a Heart and Soil histamine supplementwithin a week, i was 100 percent back to normal, and dont need zyrtec at all! In context ↗Recovered

Symptoms mentioned

Their words about their symptoms
  • Headaches & migraineMy only symptoms now, and hav always been sinus headaches, migraines In context ↗
  • Neuropathy & tinglingtingling in parts of my body In context ↗
  • Temperature regulationmy body goes completely cold and I can’t move In context ↗
  • POTS & dysautonomiaHeadache, chills, dizziness, shivers. In context ↗
  • Anxiety & low moodMinutes later I panicked and it felt like life was literally leaving me. In context ↗
  • Mast cell (MCAS) & allergieslong covid caused me to have serious histamine problems In context ↗

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