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ME/CFS Moderate → no benefit

Medium-level ME/CFS with PEM and brain fog; cacao gave no benefit

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Nov 2024
In their words
  • Condition: ME/CFSI have medium level CFS (I can work a low stress job ((I drive for Lyft)) but am always exhausted In context ↗
  • At worst: ModerateI have medium level CFS (I can work a low stress job ((I drive for Lyft)) but am always exhausted In context ↗
  • Now: No benefitUnfortunately for me, I also have leaky gut and many resulting food intolerances and ended up having an allergic reaction on my second day of trying the cacao milk. In context ↗
Read from 2 of their posts and comments; links to the one this page draws on

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Summary

A person with medium-level CFS who drove for Lyft but was always exhausted, with post-exertional malaise, sensory sensitivities, brain fog and leaky gut, found a heaping tablespoon of raw cacao powder twice a day eased fatigue, brain fog and low mood, giving sustained energy and alertness. Theobromine supplements had done nothing. On day two the cacao caused an allergic reaction; they stopped and focused on their leaky gut.

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What they tried

Also tried

dark chocolate· Helpedraw cacao· Helpedtheobromine supplements· No change
Their words about each treatment
  • dark chocolate · Helpedthinking how eating dark chocolate made me feel better In context ↗
  • theobromine supplements · No changeI first tried theobromine supplements (isolated tryptophan precursor in cacao) to no effect. In context ↗
  • raw cacao · Helpedseveral tablespoons of raw cacao alleviated my fatigue and brain fog and associated low mood In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2024-11-28medium-level CFS, driving for Lyft but always exhaustedI have medium level CFS (I can work a low stress job ((I drive for Lyft)) but am always exhausted In context ↗Moderate
2024-11-28raw cacao eased fatigue, brain fog and low moodseveral tablespoons of raw cacao alleviated my fatigue and brain fog and associated low mood In context ↗Moderate
2024-11-28allergic reaction to cacao milk on the second dayended up having an allergic reaction on my second day of trying the cacao milk In context ↗Moderate
2024-11-28stopped cacao, focusing on curing leaky gutNow I am focused on curing my leaky gut syndrome so I can hopefully use raw cacao medicinally again In context ↗Moderate

Adverse events

  • “ended up having an allergic reaction on my second day of trying the cacao milk” In context ↗ Allergic reaction / anaphylaxis

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisehave post-exertional malaise In context ↗
  • Brain fogas well as have cognitive dysfunction In context ↗
  • Light & noise sensitivitysensitive to light, sound, odors, and chemicals In context ↗
  • Mast cell (MCAS) & allergiesmany resulting food intolerances In context ↗
  • Gut problemsI also have leaky gut and many resulting food intolerances In context ↗
  • Anxiety & low moodalleviated my fatigue and brain fog and associated low mood In context ↗

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