ME/CFS brain fog and days-long flares, no improvement, learning to live with it
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 3 years
- Last post
- Apr 2022
In their words
- Condition: ME/CFS
My chronic fatigue has been more prominent since 2019.
In context ↗ - At worst: Mild
even doing things like running errands knocks me out for a few days
In context ↗ - Now: No benefit
I have been living with this for years.. and at this point I think I should just accept it and learn to live with it.. but I feel so lost
In context ↗ - Began after: nothing they could name
My chronic fatigue has been more prominent since 2019.
In context ↗
Summary
A 28-year-old who said chronic fatigue had been more prominent since 2019; they live at home and work as CFO for the family company. Brain fog and ADHD made dates and desk work hard, and errands knocked them out for days. A weekend trip triggered their worst flare, three weeks of being unable to keep up their habits; they said they felt lost and thought they should learn to live with it.
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What they tried
Their words about each treatment
- Vyvanse · Not said
Because of CFS, my Vyvanse doesn't even work sometimes..
In context ↗ - cannabis · Helped
smoking cannabis does help me get up and take care of myself but I really try not to rely on it
In context ↗ - CBD · Not said
mix it with cbd and only smoke it in the evening.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2019 | chronic fatigue became more prominentMy chronic fatigue has been more prominent since 2019.In context ↗ | Not stated |
| March 2022 | worst flare after a weekend trip; flaring for three weeksI have had my worse flare the past three weeks due to a weekend trip I took..In context ↗ | Mild |
| 2022-04-11 | still in the three-week flare, unable to keep up habits and practicesI have been flaring the past three weeks. All of the habits and practices I worked so hard to implement.. I cannot do.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
even doing things like running errands knocks me out for a few days
In context ↗ - Brain fog
due to brain fog and debilitating ADHD I have.. I forget dates
In context ↗