Bed and housebound with long COVID, some symptoms improved but thinking badly affected
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3.5 years
- Last post
- Aug 2023
In their words
- Condition: Long COVID
I have long covid
In context ↗ - At worst: Severe
Im bed and housebound can walk about 200 steps
In context ↗ - Now: Somewhat better
Some symptoms improved but I still can't be active and I struggle every day to just survive
In context ↗ - Began after: COVID
I have long covid
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Swan 82013 developed long COVID in early 2020, and a reinfection in early 2022 made everything worse. They were bed and housebound for two years, able to walk only 200 steps before their body and brain gave out, with daily chest pain, dizziness and sensitivity to light and sound. Some symptoms improved by August 2023, but their thinking was still badly affected, they still could not be active and struggled daily to survive.
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What they tried
Also tried
Their words about each treatment
- smoke (a hit or 2) · Helped
But when im stuck in my head a hit or 2 helps me relax and forget the bs
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 23 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | long COVID beganI have long covidIn context ↗ | Not stated |
| 2022 | reinfection made everything worse19 months after my reinfection and its been a living nightmare . Im bed and houseboundIn context ↗ | Severe |
| 2023-02-01 | practically bedridden, 3-4 chest pain attacks a dayIm practically bed ridden . 13 months and my brain is coming back but my body is going through itIn context ↗ | Severe |
| 2023-08-26 | still bed and housebound, some symptoms improvedLong covid messed me up pretty bad and I've been bed and housebound for 2 yearsIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I only shower twice a week because the fatigue after is horrible
In context ↗ - POTS & dysautonomia
bad chest pain , confusion dizziness etc
In context ↗ - Heart symptoms & palpitations
My chest and heart always hurt
In context ↗ - Breathlessness
i couldn't breathe
In context ↗ - Light & noise sensitivity
Im sensitive to light and sound cant process stress
In context ↗ - Muscle weakness
dizzy confused , weak , body clenched and bad pains radiated all the way from my arm to jaw
In context ↗ - Anxiety & low mood
I dont know how much longer I can take of this
In context ↗