Long COVID POTS for 2.5 years; a one-week remission, then symptoms returned
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- May 2025
In their words
- Condition: Long COVID
Been suffering with POTs for 2.5 years post infection.
In context ↗ - At worst: Mild
I'm generally healthy and quite fit.
In context ↗ - Now: Relapsed
I have had 1 weird period of remission where symptoms completely resolved for 1 week. ... (The temporary remission was over a year ago)
In context ↗ - Began after: COVID
Been suffering with POTs for 2.5 years post infection.
In context ↗
Summary
A long COVID patient describes 2.5 years of POTS since infection, with inflamed, tight throat and neck, dizziness and fainting when stretching the area, brain fog and circulation problems. A temporary remission over a year before March 2025 cleared every symptom for one week before they returned. Vagus nerve stimulation with a TENS machine helped the throat a lot, and cryoglobulins found early later became undetectable.
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What they tried
Their words about each treatment
- Vagus Nerve Stimulation via a tens machine · Helped
Vagus Nerve Stimulation via a tens machine has helped a lot!
In context ↗ - Low histamine diet · Not said
Low histamine diets suck! I'm generally healthy and quite fit. I do love my snack binges one day a week. I pay for it though!
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | POTS and other symptoms began after a COVID infectionBeen suffering with POTs for 2.5 years post infection.In context ↗ | Not stated |
| over a year before March 2025 | spontaneous one-week remission, all symptoms vanished, heart rate normalI have had 1 weird period of remission where symptoms completely resolved for 1 week. Like symptoms just VANISHED. Heart rate was normal.. circulation problems decreased a lot and brian for liftedIn context ↗ | Near normal |
| after the one-week remission, over a year before March 2025 | symptoms came back after the short remissionThe temporary remission was over a year agoIn context ↗ | Mild |
| 2025-05-28 | still investigating the illness; cryoglobulins now undetectableI'm generally healthy and quite fit. ... Over the years, I have become Cryoglobulin negative. | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
When I take deep breaths and try to stretch the area, I can become dizzy and faint. ... Been suffering with POTs for 2.5 years post infection.
- Brain fog
circulation problems decreased a lot and brian for lifted
In context ↗ - Mast cell (MCAS) & allergies
I do love my snack binges one day a week. I pay for it though!
In context ↗